Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



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Marsha D replied to Admin's discussion Help Us Get to Know You
"Alicia, let me join the others in welcoming you to the Community.  They've given good advice.  Some use the term "new normal" or "new reality".  I prefer current reallity because it changes.  My…"
7 hours ago
Erin commented on Erin's photo

dancing with my hubby

"Thank you.  This was at my sister's wedding this summer.  At one point my cousin grabbed the handle bars to Mark's wheelchair and spun us both around the dance floor.  It made Mark so happy, which in turn made me so happy."
11 hours ago
Diane Bianculli replied to Admin's discussion Help Us Get to Know You
"Alicia:  I too lost a lot of weight in the first year (about 40 lbs) due to depression, plain lack of appetitie.  Things are getting a little better for us.  Warren is putting some weight and balance on his paralyzed left leg after 18…"
11 hours ago
Teresa V posted photos
11 hours ago
Teresa V commented on Erin's photo

dancing with my hubby

"What a nice photo Erin. I can see the love in your eyes."
11 hours ago
Teresa V liked Erin's photo
11 hours ago
Alisa replied to Jimmy Emley's discussion New Here
"Welcome Jimmy.  This is a wonderful group that can share with you the benefit of LOTS of experience.  You have already learned a BIG lesson, that every stroke survivor is different and while doctors can give you "predictions" ,…"
11 hours ago
Alisa liked Erin's photo
11 hours ago


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Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Marsha D 7 hours ago. 664 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

New Here

Started by Jimmy Emley in Tell Your Story, Get Support. Last reply by Alisa 11 hours ago. 1 Reply

I am new here and just wanted to join a forum where I could hear from others how they deal with things.  My 63 year old mother suffered a stroke July 10th of this year, the second day in the ICU we…Continue

Oh Happy Day

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression. Last reply by Alisa 11 hours ago. 1 Reply

The speech therapist had dinner with my Dad tonight and decided it was time to put him on regular food/diet. He still needs liquids a little thickened. He was so excited he ate an apple to…Continue

Feeding tube suggestions

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression. Last reply by Donna Vanzant yesterday. 2 Replies

We are in the process of having my Dad to start taking his meds orally instead of through the feeding tube. He needs them crushed and tells us they are gross. We have tried in yogurt, applesauce.…Continue


My strong independent 65 yr old mother!

Posted by Yessica Ayala Vicente on July 17, 2014 at 9:44am 7 Comments

Hello everyone! My name is Yessica, I am new to the site, I am here looking for support and to educate myself so that I can care better for my mother who had a stroke almost a month ago. All this is new to me, but I want to learn as much as I can so that I can help my mother recover. I would also like to give support to others, let them know, they are not alone, we are all here to help each other in one way or another.  So here is my story....  


On June 20, 2014 ... we were…


Dale's Story.

Posted by angel alves on July 8, 2014 at 6:46pm 0 Comments

August 19, 2013 our lives changed forever. My boyfriend of 12 years was turning off the lamp in our room. I was reading a book so I was not paying attention to him. I heard some noise and asked him what he was doing. He didn't respond so I glanced over and he was looking at me strange and the t.v. was tipping over. I asked him again and I knew something was terribly wrong with him. I tried to lay him down on the floor, because he was standing there very stiff. I had to make a choice, leave…


My 79 year old Independent Mom

Posted by Jody on June 25, 2014 at 6:09am 0 Comments

  My incredibly independent mother(79) had to go in for carotid artery surgery on May 5th, 2014. She had a massive stroke while in operation and is now paralyzed on her right side with no movement for 7 weeks, she also lost her speech but is slowly gaining this back. I care for her so much its absolutely devastating to me to see her like this. She has anger outbursts a lot now and keeps saying No No No when she's upset. Also her good side of her body is always restless, she's constantly…


Caregiving has a whole new meaning

Posted by Linda Symes on June 11, 2014 at 5:26pm 2 Comments

My husband suffered his second major stroke on Mother's Day.  This stroke affected cognitive skills which has been harder to deal with.  The mood swings, anger and denial are the daily frustrations we deal with.  What makes it harder is that after 46 years of marriage, he never even raised his voice to me, now blow-ups on his part are a daily occurrence.  Some comprehension is coming back slowly but his insistence that he can drive is a major worry.  Especially since the doctors suspended…


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