Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.

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Profile IconHamid, Donna74 and Litta Simmons joined Careliving Community
20 hours ago
Erin replied to Diane S.'s discussion How is your day going?
"Teresa - Congrats to your daughter! That's great news!! I'm very excited for her.  Work has been extremely busy lately.  After Mark and I took a vacation I went to Canada for a week long conference. I have times when I manage…"
yesterday
Teresa V replied to Diane S.'s discussion How is your day going?
"Hey Erin,       Good to hear from you. Glad the family issues have calmed down for you. I can't imagine having to deal with family drama on top of everything else!      I have Jeff covered on my…"
Tuesday
Donna Allen replied to Diane S.'s discussion How is your day going?
"Bruce has trouble with finances too.  Fortunately, he only has access to his own funds.  He gets a small retirement and SS income and he gives me a portion for our household bills.  The rest is his and he doesn't have access to…"
Tuesday
Erin replied to Diane S.'s discussion How is your day going?
"I saw that it was cheaper on Amazon too! Argh! This is why I wish he would have discussed it with me.  I would have tried insurance first too. I made Mark sit down and do a monthly budget after this happened.  He saw we had very little…"
Tuesday
Donna Allen replied to Diane S.'s discussion How is your day going?
"I looked it up and there is a lot of good, positive information online about it, and I also found it for sale on  Amazon cheaper for anyone looking to buy one if insurance doesn't cover…"
Tuesday
Erin replied to Vivian S. Herrera's discussion Should I continue with therapy even though no progress?
"Two years after Mark's stroke and he is also making small incremental improvements. Some of them I don't notice because they are so gradual and I see him everyday, but when I think back to a few months ago and compare how he was then to…"
Tuesday
Donna Vanzant replied to Diane S.'s discussion How is your day going?
"Erin...Marsha has shared about the music glove. Marshall has used it. You might go back through her posts & find her comments about it. I know what you mean about travel. We love it because it gets us out of our routine and it makes us feel…"
Tuesday

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Forum

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Erin yesterday. 9605 Replies

This is the place to share your thoughts and tell us all how your day is going!Original message dated 06/12/12:I must admit, when I found out about this Careliving site, I had such high hopes. Wow, a…Continue

Should I continue with therapy even though no progress?

Started by Vivian S. Herrera in Tell Your Story, Get Support. Last reply by Erin on Tuesday. 3 Replies

Would like the caregivers opinion  on whether to continue with physical and occupational therapy although no signs of progress going on over a year of it. Please advice me someone. Or, give me some…Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Donna Vanzant Jun 22. 787 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Caregiving Is a Difficult Task !!!

Started by Pastor Louis A. Santoro in Tell Your Story, Get Support. Last reply by Marsha D Jun 15. 2 Replies

Greetings everyone in Jesus' Name, it's Pastor Lou. I have been having  more difficulty and frustration lately. My dear wife Marlene is getting more difficult because her dementia is progressing and…Continue

Stories

Stressed out

Posted by Jessica Johnson on May 18, 2015 at 9:08pm 0 Comments

My mother had a stroke last June exactly one month after her 59th birthday. At the time, I had just had a baby, and lived 5 hours away. My family members talked about me and said I didn't care about my mother. That all I cared about was my baby. I had no job and very little money. Even though they knew that, not one of them offered me a dime to come home. After leaving the hospital, my mom went to rehab. Her insurance company stopped paying for her care after 3 months because they felt she… Continue

How is your day going?

Posted by Kathleen Chutes on April 30, 2015 at 3:47pm 1 Comment

 Hello it has been awhile since I have been online to the support group. My husband will be one years post ischemic/hemorragic stroke May 18th 2015. He was in inpatient acute rehab for a month, skilled nursing for three months for rehab. Had one month of outpatient in Michigan. Three months of out patient in Florida. Then they said we have met the Medicare max. A month ago at therapy he was walking outside with therapist, in the grass without his cane. Now he can hardly walk from the trailer…

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A time of change

Posted by Barbara on March 2, 2015 at 11:10am 3 Comments

My husband of 41 yrs had a stroke late in January. Working 3rd shift woke to go to work. He said his hand was asleep and left for work. The next morning he came in and said his entire R side was numb and tingly. Went to ER and was told that he had had a stroke. We were in the hospital for 2 days and went home. The next day we went to church to see our oldest daughter and youngest grandson be baptized. During the service Sam had another stroke. Had to call an ambulance this time. Luckily there… Continue

My name is Darryl Brown.  My wife of 44 just had a stroke in November.  Left brain stroke with aprxia. So far every Dr weve seen has said the same thing. That they are amazed at the progress she has …

Posted by Darryl Wesley Brown on February 2, 2015 at 12:53am 4 Comments

My name is Darryl Brown.  My wife of 44 just had a stroke in November.  Left brain stroke with aprxia. So far every Dr weve seen has said the same thing. That they are amazed at the progress she has made considering how strong the stoke was. So In the big picture, she is doing very well. However, they say we only have 12 months from the date or the stroke (Nov 20, 2014), for the "learning again process" to happen at a reletively quick pace. At that point it slows down considerably. If she is…

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