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Profile Iconwendy, Stacey and KCB joined Careliving Community
10 hours ago
Joan Hall posted a story

Reluctant Acceptance of a Changed life

My name is Joan.  And I am a Caregiver.  It has been almost five years since my husband’s final major stroke.  Time has passed, but struggles continue.  I have been forced into a place of reluctant acceptance.  All that had once been normal has vanished, leaving a twisted version of “our happily ever after.”  My husband has no memory of who he once was (I wish I was that lucky).  John is not able to miss what he does not remember.  But unfortunately, I do remember.  I want to cry for him,…See More
Saturday
Joan Hall commented on Kathy Swanson's blog post 5 Year Anniversary
"Kathy, there is a “hero” inside of you – despite the fact that a deadly opponent has attempted to smother you in the grasp of its destruction.  My definition of a stroke is the following:  “A stroke is a…"
Saturday
Joan Hall shared Kathy Swanson's blog post on Facebook
Saturday
Sherene replied to Barbara Swartz's discussion Giving too much of my life to husband.
"Diane, My deepest condolences on the passing of your mom. It's a lot to be going through."
Saturday
Diane Bianculli replied to Barbara Swartz's discussion Giving too much of my life to husband.
"Sherene:  Thank you for reminding me that I must remain positive.  Last night Warren and I couldn't sleep.  He kept calling me from his LTC facility and I kept calling him from my bed at home.  We just couldn't…"
Friday
Profile IconRoberta Kidd, Tracy, Rose and 4 more joined Careliving Community
Friday
Lauren commented on Kathy Swanson's blog post 5 Year Anniversary
"Kathy, I'm new to this and am not really sure how this works but I picked your story and read it and it brought tears to my eyes. My mom had a stroke last May. She lost her independence and it is so hard to watch her suffer...mostly in her own…"
Thursday

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Forum

Giving too much of my life to husband.

Started by Barbara Swartz in Tell Your Story, Get Support. Last reply by Sherene on Saturday. 14 Replies

I read this is how you get emotionally drained.  I guess I need to find a way to care about my life as much as I care abouthis.  Because I am sure drained right now.Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Rosalina Santos Aug 15. 1155 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Anyone in NJ

Started by Rosalina Santos in Tell Your Story, Get Support Aug 15. 0 Replies

Hi Everyone,I was just wondering if there is anyone that lives in New Jersey and has received in home services.  I am wondering, how much services were you given when you came home.  My fiancé…Continue

Tags: therapy, services, discharge, ischemic

Expert Speak

Started by Admin in Topic of the Month. Last reply by Staci Blinn Aug 15. 37 Replies

This area is for articles by healthcare professionals and other caregiving topic experts, written exclusively for Careliving℠ Community.Continue

Stories

Reluctant Acceptance of a Changed life

Posted by Joan Hall on August 19, 2017 at 12:46pm 0 Comments

My name is Joan.  And I am a Caregiver.  It has been almost five years since my husband’s final major stroke.  Time has passed, but struggles continue.  I have been forced into a place of reluctant acceptance.  All that had once been normal has vanished, leaving a twisted version of “our happily ever after.”  My husband has no memory of who he once was (I wish I was that lucky).  John is not able to miss what he does not remember.  But unfortunately, I do remember.  I want to cry for him,…

Continue

My mom has had 2 strokes. One was an acute stroke in 2015 which she made an almost full recovery. Then in Nov 2016, she had a major stroke as a result of an aneurysm surgery. It's has been an emotion…

Posted by Sherene on August 14, 2017 at 2:54am 0 Comments

My mom has had 2 strokes. One was an acute stroke in 2015 which she made an almost full recovery. Then in Nov 2016, she had a major stroke as a result of an aneurysm surgery. It's has been an emotional roller coaster for my dad and I, but each time I look at her I cannot imagine what it feels like for her to be robbed of her independence.



When her days are good, it's amazing for all of us. We laugh louder and harder because it's our sound of relief. But she has her bad days where… Continue

My mom has had 2 strokes. One was an acute stroke in 2015 which she made an almost full recovery. Then in Nov 2016, she had a major stroke as a result of an aneurysm surgery. It has been an emotional…

Posted by Sherene on August 14, 2017 at 2:30am 0 Comments

My mom has had 2 strokes. One was an acute stroke in 2015 which she made an almost full recovery. Then in Nov 2016, she had a major stroke as a result of an aneurysm surgery. It has been an emotional roller coaster for my dad and I, but each time I look at her I cannot imagine what it feels like for her to be robbed of her independence.



When her days are good, it's amazing for all of us. We laugh louder and harder because it's our sound of relief. But she has her bad days where she's… Continue

5 Year Anniversary

Posted by Kathy Swanson on August 12, 2017 at 10:00pm 2 Comments

Today is our 5 year anniversary of my husband's stroke. I should say our stroke because we both were devastated by his Brain Stem stroke. Our life was over on this day this hated day. We have went through every emotion possible hope,despair, compassion, anger,sadness, grief, acceptance and always love. We accept now that he will never get better and I think I've excepted his slow deterioration. We have our routine, we finally have a good caretaker. We have a beautiful granddaughter we love and… Continue
 
 
 

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