Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.




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Callie K replied to Admin's discussion Help Us Get to Know You
"Hi and thank you for the add.  We are currently 1.3 years out from my sons stroke at 5 years old.  Cruz was a normal little guy who was always full of energy.  Unfortunately, he had a basilar artery stroke when he was 5 and was close…"
Jul 12
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Elizabeth posted a discussion

Insurance denying therapy

Hello all. I have written previous posts about my fathers stroke. It’s been about 2 months since he suffered his stroke and he has made strides in recovering. Everyone keeps saying he’s doing well but because if his age and the severity of his stroke his recovery will take time. His insurance decided to end his therapy for “lack of progress” and we appealed. Today we were told our appeal was denied. Does anyone know what- if anything - we can do? He is on Medicare. Thank you in advance.
Jul 4
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Jul 2
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Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Callie K Jul 12. 1248 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Insurance denying therapy

Started by Elizabeth in Tell Your Story, Get Support Jul 4. 0 Replies

Hello all. I have written previous posts about my fathers stroke. It’s been about 2 months since he suffered his stroke and he has made strides in recovering. Everyone keeps saying he’s doing well…Continue

Please tell me your experience

Started by Elizabeth in Tell Your Story, Get Support. Last reply by Barbara Lambert Jun 12. 5 Replies

Hello. My father suffered a stroke 4-22-19. He has made improvements but I want to know what the timeline was for recovery in your experience. My father still has trouble with cognition and has…Continue

Mom's mental health?

Started by Haley in Tell Your Story, Get Support. Last reply by AHA/ASA Katie Bahn Jun 11. 1 Reply

Hi, I am a 22yo woman who has recently become a full-time (~8am-5pm, dad helps when he's home from work) caregiver for my 55yo mother who had a severe stroke several months back. Before the stroke,…Continue


Feeling Isolated and Guilty

Posted by Kayla on June 17, 2019 at 10:23pm 0 Comments

My grandma had a stroke a month ago. Since then I have been struggling to keep it together. 

I spent every day and night at her bedside in the hospital leaving for no more than 10 hours total over a 6 day period. Then 12 hours every day I could at the rehab hospital. She made me go back to work after a few days in rehab. I live 2.5 hours from where she was hospitalized. Leaving was heartbreaking.  

Now I struggle with who I can  turn to in moments I need to vent…


Finally progress 9 months after stroke

Posted by N Hansen on June 4, 2019 at 8:26pm 1 Comment

Hello all. My mother, 89 years old, had a stroke (bleeding from a giant brain aneurysm) in August, 2018. She was completely bedridden for five months until January, and developed a stage 4 wound because she couldn't move and caregivers didn't turn her often enough. We brought her to live at my house with caregivers, the wound is now nearly healed, and eventually we were able to get her up into a wheelchair using a Hoyer lift for a few hours each day. In May, we moved her to a better…



Posted by Jessie on June 4, 2019 at 12:14pm 1 Comment


My boyfriend had a stoke 9 days ago. He is currently in in patient rehab. It's extremely hard for both of us. He is normally a very active person and now he is frustrated because he can't do anything. I feel bad that I can't really help him feel better. My entire life I have always been the person taking care of things and making everything better with my mom being sick. Right now I just feel so helpless because I can't help my boyfriend feel better. I can't fix anything. I…


Helping a friend with dementia after stroke

Posted by Dana Adams on June 2, 2019 at 2:05pm 1 Comment

My friend is a miracle. First that she survived at all. Her physical recovery is maybe better than on track. She broke her hip last month and is up and walking often without the aid of her walker. Her vision is impaired but her hearing, speech and movement are close to normal considering. Unfortunately she has dementia and is beset with irrational fears. I didn't know her pre stroke so I'm not sure if the dementia is entirely stroke related. Her family reports some signs pre stroke but her… Continue

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