Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



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Julie Stoneberger replied to Julie Stoneberger's discussion Pajama buttoms
"URSEC spill proof male bottle. Look at amazon. It's allowed him to sleep at nights"
3 hours ago
Kathy Swanson replied to Vincent D.'s discussion What we learn about family and friends
"All that's left after 2+ years are our true friends and family. Everyone calls and says let me know if you need anything... what a joke. They know what I need and if they were true friends they would just do it without me gaving to ask. Try…"
3 hours ago
Laura S Beving replied to Vanya Medina's discussion Having a hard time adapting? Tips
"Vanya, I highly recommend watching this webinar on Depression and Other Emotional Problems After a Stroke     Join topic expert Sara Palmer, PhD, for the webinar Depression and Other Emotional Problems After a Stroke and get the latest…"
3 hours ago
Donna Vanzant replied to Diane S.'s discussion How is your day going?
"So good when you can see improvements! We have a support group but have missed attending for 2 months. Discussion is always pertinent to stroke & the effect it is having on our lives. Always have a great time and feel renewed when we leave. We…"
5 hours ago
Vanya Medina replied to Vanya Medina's discussion Having a hard time adapting? Tips
"Hi Kathy,I will definitely look into her medication and see if that is affecting her in some way.I have been also thinking about going to a pastor that can help me get through some rough times, but now that you said it I think I really should start…"
5 hours ago
Cindy Krasinski replied to Diane S.'s discussion How is your day going?
"Marsha, your support group sounds terrific.  the one Ike and I went to several times was very disappointing.  Every time we went, there was someone there trying to sell us something that would guarantee movement in the arm or improvement…"
5 hours ago
Donna Allen replied to Diane S.'s discussion How is your day going?
"Sounds like you have a really good support group, Marsha!  We went to one here and it was a total waste.  We went in the hopes of learning from others, sharing ideas, etc.  We drove over half an hour to sit and listen to a…"
6 hours ago
DI replied to Julie Stoneberger's discussion Pajama buttoms
"You can always have someone else do it for you.  If I get it perfected maybe I can send you the pattern I have to make or a pair of shorts.  Let me see what I can do.  Busy dealing with some other issues right now but when I get back…"
6 hours ago


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Pajama buttoms

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression. Last reply by Julie Stoneberger 3 hours ago. 5 Replies

Hello. I haven't been on here for a little while. Hope you are all doing well.I was hoping someone might have insight for my question:My dad uses a spill proof urinal at night. We put it on him at…Continue

What we learn about family and friends

Started by Vincent D. in Caregiver Frustration, Anger, Depression. Last reply by Kathy Swanson 3 hours ago. 86 Replies

My lovely wife, April-47 years old,suffered a massive stroke last August, left mca occlusion. During her initial stay in ICU, her neurologist predicted she would be dead within a few days and many…Continue

Having a hard time adapting? Tips

Started by Vanya Medina in Caregiver Frustration, Anger, Depression. Last reply by Laura S Beving 4 hours ago. 3 Replies

My mom had a hemorrhagic stroke in March of this year. She had always been my cheerleader and main support, I was in school and had excellent grades. After the stroke she developed mood disorders and…Continue

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Donna Vanzant 5 hours ago. 8211 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue


Thank God every day

Posted by Jan K on September 29, 2014 at 6:13pm 0 Comments

My husband had his first stroke 10/8/13. It looked like a stroke so I called 911. The neurologist thought it was a tia because everything seemed to come back within an hour. The scan showed differently. They ran other tests and found a hole in his heart. They signed us up for a study so we could hopefully get it closed. Jeff was the perfect candidate - he was 52, his last physical a year prior had awesome results, and he had no prior medical issues. When we were in the process of being…


Medulary Stroke- very different syptoms

Posted by Angela Cornes on September 22, 2014 at 7:22pm 0 Comments

My husband (boyfriend of 2 years at the time) had a left medullary stroke 13 months ago. He had every symptom of Wallenberg's Syndrome and was in Neuro ICU for 13 days. He was 50 and I 36.  I was by his side 20 hours a day to be there when the Dr.s made rounds. Over saw every test, therapy session, and bathed him. Fast forward to today: he has recovered 85%. He still has to check his balance on occasion because of pain or numbness in his right leg. He has nerve pain on the left side of his…


Lost with no idea where else to turn

Posted by Justine Arnold on September 16, 2014 at 11:13am 2 Comments

I am 34 years old and just graduated college to become a teacher. I still have my certification test to take but cannot find the mindset to complete them. My husband had his stroke last year at the age of 28. They have not found the cause of the stroke and he continues to have what he calls brain fog or dizziness that has hindered his ability to work or dive. Doctors do not know the origin of these symptoms and continue to release us from their care despite the fact that since his original…


Where to start

Posted by Annalene Pretorius on September 16, 2014 at 7:22am 3 Comments

So I just need to ask where do I start, my mom had a minor stroke a week ago (tia) and her speech is effected in a way that she sometimes can't remember the words or cant get the words out or get them switched around. But now she also gets confused and disorientated. What do I do how do I start? I work full time and She can't drive in the state she is in at the moment. Please help


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