Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



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Donna Allen replied to Diane S.'s discussion How is your day going?
"Shari, I'm so glad you reached the 5 year mark but you do need to continue to get checked!  I understand though - I have a hard time caring enough to take care of me too.  I'm glad though that I did get my pap test and found this…"
10 hours ago
Angie Vazquez replied to DI's discussion I hate these awful medications!
"Hi Di, I'm just reading your post today and I wished I had read it before.  My husband like yours had a couple of strokes and then he had a serious seizure which continued on clinically while in the hospital.  He was very ill during…"
11 hours ago
Sue k replied to Diane Bianculli's discussion Abandoned..Where is everyone??
"I think people just don't know how to react to and are at a loss as to what to say.  It's sad though.  Interaction with multiple friends and family members would certainly help recovery."
16 hours ago
Shari replied to Diane S.'s discussion How is your day going?
"Donna I had uterine cancer and hit my 5 year cleAn mark. Fortunately it was 3 years before Als stroke. Since the stroke I had been lax in getting my 6 month check ups. My physician was so angry. So I had my final visit last month. I too had daVinci."
18 hours ago
Shari replied to Diane S.'s discussion How is your day going?
"Al hasn't gotten out of bed in two days now. Friends are coming to take him out today for lunch. Will he be motivated?? He also didn't eat yesterday except breakfast. Not sure what's going on. All last week he didn't know it…"
18 hours ago
Donna Allen replied to Diane S.'s discussion How is your day going?
"Yep - and from my observation it doesn't go away after a year as they insinuate.  It gets worse.  It's been four years since Bruce's first strokes and his memory and mood swings seem to gradually worsen over time. "
Rachel Fischoff replied to Diane S.'s discussion How is your day going?
"WebMD News Archive April 11, 2002 -- Seemingly random or unprovoked anger and irritability among stroke patients may be effect of stroke-related brain damage, according to a new study. Although uncontrolled anger and aggression are frequently…"
Debra Craig replied to Grace Nubile's discussion Frustration with Friends and Family
"I'm so sorry, and it seems like that happens to so many of us. I don't know why & I get angry and sad for my husband. Even with his Aphasia and apraxia he can still listen and is getting better in his language. Our church members have…"


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How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Donna Allen 10 hours ago. 8001 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

I hate these awful medications!

Started by DI in Tell Your Story, Get Support. Last reply by Angie Vazquez 11 hours ago. 8 Replies

Good Morning everyone!I know I have not been on much lately but things just are such a mess right now.  I have been following everyone and want to thank all of you for your stories.  Be they good,…Continue

Abandoned..Where is everyone??

Started by Diane Bianculli in Tell Your Story, Get Support. Last reply by Sue k 16 hours ago. 2 Replies

What happens to the families, friends etc?  Can anyone shed some light on this.  When the stroke victim initally has a stroke it seems like everyone is there..praying, visiting, offering help, crying…Continue

Frustration with Friends and Family

Started by Grace Nubile in Caregiver Frustration, Anger, Depression. Last reply by Debra Craig on Saturday. 8 Replies

Joe had a stroke a few months ago, he is suffering from aphasia and Apraxia and cannot speak, he can understand and he recognizes everyone.  No friends and family will go visit him because "its…Continue


The new normal after husband' stroke

Posted by Debra Craig on August 29, 2014 at 9:47pm 1 Comment

My sweet husband had a series of strokes about 2 years ago. His were all Ischemic left-side which left his right side of his body quite weak (although now he can walk with a cane) and he has some cognitive issues and Aphasia (which is the most frustrating part). Luckily he has a great sense of humor and through Department of Assisted Rehabilitation was able to receive vocational therapy and now works part-time(all that he has stamina for) at a local Outreach center 2 & 1/2 days a week.…



Posted by Kathy Swanson on August 19, 2014 at 3:00am 11 Comments

I let my husband die finally. The man I married 39 years ago, my partner, my best friend, my lover and the father of my child. I accept I will never see him again.

I decided to accept the man he is today and to not to dwell on what I lost but what I have today. It has been two years since his stroke and I am tired of trying to make him well when that is never going to happen.

Instead of concentrating on his illness we are going to take back our lives. We are going out to eat,…


New Stroke becomes new worries..s

Posted by angel alves on August 1, 2014 at 2:40am 2 Comments

So Saturday Dale had another stroke. His INR was therapeutic and they now want his INR to be 300 for therapeutic. I'm so overwhelmed with my own emotions on top of trying to help him with his. I'm scared I'm going to lose him if we can figure out what is causing this or what we can do to prevent it.

My strong independent 65 yr old mother!

Posted by Yessica Ayala Vicente on July 17, 2014 at 9:44am 9 Comments

Hello everyone! My name is Yessica, I am new to the site, I am here looking for support and to educate myself so that I can care better for my mother who had a stroke almost a month ago. All this is new to me, but I want to learn as much as I can so that I can help my mother recover. I would also like to give support to others, let them know, they are not alone, we are all here to help each other in one way or another.  So here is my story....  


On June 20, 2014 ... we were…


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