Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



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Marsha D replied to Admin's discussion Help Us Get to Know You
"Hello Claire. I am not familiar with what you describe but sit tight. Someone on this site will probably be familiar with it. If I were in your shoes I'd probably do same as you and take her back to the hospital or at least to the doctor."
24 seconds ago
Claire Louise replied to Admin's discussion Help Us Get to Know You
"My Mom had her stroke two weeks ago tomorrow.   We were told that she had a slight stroke in her occipital lobe; other than 'eye arcs' in one eye she really hadn't suffered any other side effects from the stroke.  …"
31 minutes ago
Profile IconCaroline H. Joss and Claire Louise joined Careliving Community
1 hour ago
christine upton liked Admin's discussion What Happens When The Caregiver Gets Sick?
15 hours ago
Diane Bianculli replied to Diane S.'s discussion How is your day going?
"Ann:  Never stop praying and never give up hope.  My boyfriend Warren believes he is going to be healed.  WE NEVER KNOW what God has in store for us. "
21 hours ago
Diane Bianculli replied to Diane S.'s discussion How is your day going?
"Hi Teri:  Sorry to hear you had such a bad night.  i hope you have or had some tmie to rest up.  I know when Jeff said "thank you" you must have had such a warm feeling.  It's soooo nice to be…"
21 hours ago
Ann Hunt replied to Diane S.'s discussion How is your day going?
"I don't know.  I'll never know where that line is.  Sometimes I'll get it right, sometimes I won't, somedays I'll have more time and patience.  Somedays I'll give him some slack and he'll pour the…"
21 hours ago
Sue k replied to Diane S.'s discussion How is your day going?
"Yes, I keep thinking I am enabling just because I do certain things he should be trying to do by himself.  How are we to know at what point helping is hurting?  "
21 hours ago


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Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Marsha D 25 seconds ago. 593 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Diane Bianculli 21 hours ago. 6898 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

An AAC Device that might help adults with Aphasia

Started by Barbara Weinbaum in Tell Your Story, Get Support. Last reply by Julie Stoneberger on Tuesday. 1 Reply

Hi, My name is Barbara and I work for a company called Lingraphica.  We manufacture speech-generating devices for adults with aphasia. With the help of Lingraphica products, adults with aphasia or…Continue

Service dogs

Started by Michelle russell in Care Strategies. Last reply by Julie Stoneberger on Tuesday. 13 Replies

Just wondering if anyone else is using a service dog? We have a wonderful black lab shepherd mix that has been a life saver for me and my husband. We have a trainer that comes to the house once a…Continue


Angels at Easter!

Posted by DI on April 18, 2014 at 12:18pm 0 Comments

I just want to Wish everyone a Happy and Blessed Easter! Spring has sprung! I just looked at my mothers plant that has not blossomed all year. It is an African violet. My mother passed away 7 years ago. So when I looked at it a little while ago, imagine the feeling when I saw that it has buds over night. Just in time for Easter. My moms name was Esther so we always teased her and called her Easter this time of year. She was a wonderful and giving person. So she has just proven to me that she…


Medical Mishap??

Posted by Toni on April 11, 2014 at 6:52pm 1 Comment

My mom was a vibrant, young, dependent person at the age of 79.  She had limited health issues and took meds for high blood pressure and a-fib which included coumadin.  My mom also was diagnosed over 20 yrs ago with a small cancerous spot in her left eye.  In 2013 her eye dr said that the spot in her eye had thickened and that she should be treated with a radiation plaque (which she did 20 yrs ago when it first happened).  So we decided that she should have the surgical procedure.  She got…


insurance merry-go-round...

Posted by Stephanie Juarez on April 11, 2014 at 10:31am 4 Comments

It's been 4 months since my boyfriend suffered a massive stroke, well, actually 4 strokes.  He had a large bleed on the right, a smaller bleed on the left and two in the Cerebellum.  He is only 41 years old.  They suspect that untreated Hypertension was the main cause.  My understanding, from one of his attorneys is that the doctors said he wouldn't live past 30 days.  He is paralyzed on his left side, arm and leg, (although, the toes have started wiggling on demand). And until last week…


And so it ended...

Posted by Barbara Weill Greenberg on April 11, 2014 at 5:46am 3 Comments

I stopped writing months ago when everything seemed to go bad. He was yelling at me, ordering me around, even insisting that I call the cardiologist who is very caring and an excellent doc, and tell him to change the med dose. When I wouldn't call, he tried it insist I change the Coumadin dose on my own. No way. His reasoning went downhill, as did his physical progress. He talked less and less. He couldn't sit straight in his chair and drooled constantly although the ST told him he had to… Continue

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