Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.

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Profile IconSuzi Self and Belinda Dubose-Hooks joined Careliving Community
7 hours ago
Donna Vanzant replied to Diane S.'s discussion How is your day going?
"Teresa...we've been through lots of trial and error on this. The incontenance goes up & down. He takes tamulosin & finisteride currently. Stroke was 6 years ago and he is almost totally paralyzed on the left side. He needs help…"
11 hours ago
Teresa V replied to Diane S.'s discussion How is your day going?
"Hi Everyone,    Looking for a little advice. Jeff had his stroke 4 years ago the end of Sept. He never really had much of an incontinence problem at first. Then about a year in he would have occasional dribbling problems at night while…"
11 hours ago
sue liked Nancy's discussion How does the caregiver survive?
yesterday
Nancy replied to Nancy's discussion How does the caregiver survive?
"I noticed I wrote in here in November 2013. I could write the same words today and mean every one of them. Now, nearly two years later, there is no change. I would say I am in the resentful stage and feel like I can't do it one more day. Of…"
yesterday
Eva replied to Nancy's discussion How does the caregiver survive?
"Sue, people just don't understand how hard and exhausting this is.  I have hope that one day my husband will be able to walk and use his arm and our life will be more normal.   "
yesterday
Eva replied to Nancy's discussion How does the caregiver survive?
"My husband, a very young aged 66, had a stroke in April of this year.  No feeling on the left side but we are working constantly with the therapists.  He has no problems with speech or communication, but he is mentally not the…"
yesterday
Pat Nixon replied to Diane S.'s discussion How is your day going?
"Hello Ladies, Thank you all so much for your out- pouring of advice & prayers. I knew you would help me feel better and you did ! I received a call today from a "Nurse Navigator" that has been assigned to me and I bombarded her with my…"
yesterday

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Forum

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Donna Vanzant 11 hours ago. 9710 Replies

This is the place to share your thoughts and tell us all how your day is going!Original message dated 06/12/12:I must admit, when I found out about this Careliving site, I had such high hopes. Wow, a…Continue

How does the caregiver survive?

Started by Nancy in Caregiver Frustration, Anger, Depression. Last reply by Nancy yesterday. 9 Replies

Do you ever wonder what might make you happy?  When was the last time you felt happy, loved or supported?  I realize I am whining and feeling so "poor me" at the moment.  I'll admit it doesn't happen…Continue

4 months post AVM rupture- new to site

Started by Rosemary in Tell Your Story, Get Support. Last reply by Barbara Lambert Aug 18. 5 Replies

I found this site thinking it would make me feel more optimistic about what my Mom's (and my family's) future might look like. It hasn't done that. I feel like I am reading glimpses into our future…Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Donna Vanzant Aug 11. 810 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Stories

Ignorance

Posted by Kathy Swanson on August 4, 2015 at 7:09pm 1 Comment

On August 19, 2015 it will be three years since the brainstem stroke that devastated our lives. My husband, Ron, will never be the same again. He is now a quadriplegic with all that implies.

Three years ago when we were in ICU , acute care and rehab I wish their was someone anyone who could have told me what I would be facing in the months and years to come. We were sent home with a bed and a lift not even a wheel chair. I received no training did not know what a UTI was or what to…

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Unanswered Questions

Posted by N. Cep on July 29, 2015 at 4:39pm 0 Comments

My mother had an aortic dissection 2 years ago (March, 2013 when she was 62). She collapsed on a ski slope. She had an emergency valve replacement that was successful. A year and a half later, she had her descending Aorta repaired more extensively with a two part surgery that involved a second open heart surgery, a gore-tex lining to her aorta, and a few months with a wound vac. 2 months after the end of that surgery, she got shining reviews from her surgeon and was ready to live life…

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What is the wrong thing to say?

Posted by N. Cep on July 28, 2015 at 11:44am 0 Comments

1) The wrong thing to say is anything that implies that you don't understand how completely my world was turned upside down by my mother dying. 

Don't ask my professional and geographical plans, at least not to start a conversation. These are hard questions, even when I'm not dealing with grief; Even when my world has not just been turned upside down. You'll probably know what comes next soon after I know what comes next.

2) The wrong thing is anything that implies that I…

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What happens now?

Posted by N. Cep on July 28, 2015 at 11:38am 0 Comments

I think the idea that there are steps to grieving or that there is a point when you get over the grief is totally wrong. However, as you said, it is correct is that we are not prepared for it. I think our society is a bit in denial of death. And though the loss of a loved one is one of the most natural processes, more natural than even birth, I would argue, we have this perception of it as an anomaly. I think we can change this by talking about death more over the course of our whole…

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