Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.

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Peggy posted photos
6 hours ago
Profile IconMolly and Julie joined Careliving Community
6 hours ago
Pat Nixon replied to Barbara Swartz's discussion Where Do You Get Energy From?
"Take it one day at a time. Sounds simple enough but it can be difficult not to worry about the future. I hope you have support from family & friends as that's very important too. Good luck & (((Hugs))) "
7 hours ago
Pat Nixon liked Barbara Swartz's discussion Where Do You Get Energy From?
7 hours ago
Barbara Swartz posted a discussion

Where Do You Get Energy From?

My husband hasn't even come home from rehab yet.  Maybe in a week.  But it's been over three weeks of stress and physical tiredness.  Exhaustion the first week.  I stayed with him in the hospital.  For over two weeks.See More
7 hours ago
Profile IconSuzie Lostaunau and Tatiana Rudzinski joined Careliving Community
yesterday
Twila Harris commented on Kathy Swanson's blog post Four Years And Counting
"One day I hope to grow up and be like Ms Marsha accepting my current reality. Right now I'm watching my husband sleep. His pressure was 106 tonight so I'm keeping a close eye on him. I feel angry too when I go to church and have to get…"
Monday
Barbara Lambert replied to Barbara Swartz's discussion Book Suggestions for New Caregivers?
"I think a lot depends on the nature of his difficulties, how serious, what kind of stroke but, in general I'd suggest the following (and I've tried a lot of them). Also, I'd recommend if you're on Facebook to get on some of their…"
Sunday

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Where Do You Get Energy From?

Started by Barbara Swartz in Tell Your Story, Get Support. Last reply by Pat Nixon 7 hours ago. 1 Reply

My husband hasn't even come home from rehab yet.  Maybe in a week.  But it's been over three weeks of stress and physical tiredness.  Exhaustion the first week.  I stayed with him in the hospital.…Continue

Book Suggestions for New Caregivers?

Started by Barbara Swartz in Tell Your Story, Get Support. Last reply by Barbara Lambert on Sunday. 1 Reply

My husband had a stroke a few weeks ago.  He has been in rehab for four days. Is there any good books to help someone new to all this?Continue

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Louise Sonnet Aug 16. 9952 Replies

This is the place to share your thoughts and tell us all how your day is going!Original message dated 06/12/12:I must admit, when I found out about this Careliving site, I had such high hopes. Wow, a…Continue

Stories

Four Years And Counting

Posted by Kathy Swanson on August 18, 2016 at 11:00pm 7 Comments

It's been four years since my husband's devastating stroke that changed our lives forever. I no longer know how to feel. The day to day of caring for a quadriplegic is exhausting and never ending. I have no friends or family left. We are the forgotten. Good help is non existent. He has become my child looking to me for all the answers and I don't have them. I decide when he eats, drinks, baths, and when he goes to the bathroom. I give him his meds and injections I change his… Continue

Just Joined

Posted by Andy on August 11, 2016 at 1:38am 0 Comments

Hi.  My name is Andy.  I am 58.  My Mum had a stroke some time between Christmas 2014 and New Year's Eve.  She was discharged to palliative 'end of life' care after a few weeks in hospital.  I got her fast-tracked to a really nice nursing home near her friends, neighbours, family, and ex-colleagues so that we could all say goodbye to her in the last few days of her life.

That was a year and seven months ago.  She is still alive.  She can't speak, or move.  She is in constant pain from…

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Growing up by force

Posted by Eric on August 8, 2016 at 4:05pm 1 Comment

Hello, i am 17, 9 months ago my mother had a massive stroke to date she is unable to walk, complete sentences or move the affected side.

She had an alcoholic boyfriend who relapsed on the same day she had a stroke. With him in a constant stupor i was suddenly alone responsible for all of my mothers affairs as well as my schooling and taking care of her fast forward 2 months of her boyfriend drinking nonstop and not lifting a finger to help

I rode my bike 8 miles daily to see my mom on… Continue

coming up on a year

Posted by Nancy on May 28, 2016 at 8:36am 0 Comments

My brother drove out from California to visit us in Colorado for the 4th of July. As we were getting ready to leave for the mountains he had a sudden severe headache. Because he had a history of Migraines we gave him the appropriate medicine and he went to bed. It wasn't until the next morning that I realized it was a stroke. Against his wishes I called for an ambulance. He was airlifted from the local hospital to Swedish in Denver. I couldn't tell you exactly how long he was in the ICU this…

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