Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.




Latest Activity

Laura Martin replied to Laura Martin's discussion getting stroke victim to eat
"That is so interesting. I never thought about it being the only thing that he could control. he only says a few words... spontaneously. today he did eat something pureed food that the nurse is fed up otherwise he was only eating two family members.…"
20 hours ago
Mary Ann replied to Laura Martin's discussion getting stroke victim to eat
"Can he talk and tell you why? Can he drink okay?  Maybe break it down to more liquid.  He might not understand why he is eating "baby" food.  Taste may be affected.  Depression.  Could be it is the ONLY thing he…"
22 hours ago
Laura Martin replied to Laura Martin's discussion getting stroke victim to eat
"Not yet. He will only eat for family members not nurses at rehab. We got him to eat a little pureed food. Thank you for your response."
22 hours ago
Mary Ann replied to Laura Martin's discussion getting stroke victim to eat
"Can he feed himself?  Is he on a pureed diet?  Has he had OT try to work with him.  Will he eat with others or prefer to eat alone?"
Profile IconJo Anne B and Nancy Shewell joined Careliving Community
Diane Bianculli commented on Mary's blog post Lonely and confused
"Mary:  I agreewith Fernando.  God is with us.  Sometimes you have to look really hard but we are given blessings by God.  Your husband is still alive.. You have children who love you.  You have a few friends who are still…"
Theresa Loder replied to Diane S.'s discussion How is your day going?
"Shari It sounds like you are doing a great job and under the most challenging circumstances. I'm sending you you lots of positive thoughts to find just the right place. And a great big hug Take care Theresa"
Mary commented on Mary's blog post Lonely and confused
"Thank you Fernando. I will try."


  • Add Photos
  • View All


getting stroke victim to eat

Started by Laura Martin in Tell Your Story, Get Support. Last reply by Laura Martin 20 hours ago. 4 Replies

My dad had a hemorrhagic stroke on left side of brain 2 1/2 weeks ago. The tubes have been out of him for a week but he won't eat for nurses. He will for my sister but just a little. He doesn't…Continue

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Theresa Loder yesterday. 8389 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Marsha D Oct 19. 707 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

anniversary for strokes?

Started by Jan K in Tell Your Story, Get Support. Last reply by Debra Craig Oct 11. 3 Replies

My husband knows the dates of his strokes. Today is the mid-day between his two strokes. I didn't bring it up but simply mentioned, "You've come along way baby!" He responded,"So have you." He still…Continue

Tags: Smiles


Lonely and confused

Posted by Mary on October 19, 2014 at 4:13pm 3 Comments

Hi, my name is Mary. My husband Tom has a bad stroke 4 years ago. He has aphasia and apraxia. He is right side affected. I have always visiting this site but have not shared our story. I am 57 and Tom will be 59. We have been married for 37 yrs. in Nov. I feel so lonely and scared. The communication is so difficult. He just ignores me. I have tried to do the best job I could. I left my job because they wouldn't let him come home unless he had 24/7 care. He can drive. I had both vehicles… Continue

I got sick and needed help

Posted by Erin on October 18, 2014 at 9:24am 0 Comments

Yesterday morning I woke up with the worst abdominal pain.  I was in so much pain I couldn't get out of bed.  I tried and I felt like I was going to pass out. I was dizzy, weak, and felt like throwing up.  The only thought running through my head was that I couldn't take care of Mark.  My husband couldn't take care of me and I couldn't help him out of bed. I know we have all felt this at some point and it's scary.  We needed help.

We called his Dad... no answer.  We called his mom...…


Dodging Conversation

Posted by Elizabeth on October 5, 2014 at 10:36pm 1 Comment

Last week my husband started a full garbled conversation in the middle of the night. I couldn't understand what he was talking about, in part because his speech is still very slurred combined with me waking from basically a dead sleep. Since it is rare for me to be able to get any sleep these days I told him to just try to close his eyes, relax & get some sleep. About 4hrs later I finally had to get up from my air mattress in his room to sleep in my bedroom. I am still sleeping here &… Continue

Thank God every day

Posted by Jan K on September 29, 2014 at 6:13pm 0 Comments

My husband had his first stroke 10/8/13. It looked like a stroke so I called 911. The neurologist thought it was a tia because everything seemed to come back within an hour. The scan showed differently. They ran other tests and found a hole in his heart. They signed us up for a study so we could hopefully get it closed. Jeff was the perfect candidate - he was 52, his last physical a year prior had awesome results, and he had no prior medical issues. When we were in the process of being…


© 2014   Created by Admin.   Powered by

Badges  |  Report an Issue  |  Terms of Service