Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



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Laura commented on Barbara Weill Greenberg's blog post And so it ended...
"Hugs to you.  "
4 hours ago
Laura replied to Julie Stoneberger's discussion Not another one
"How is your mom?"
4 hours ago
Samantha lassiter liked Heather Terrell's blog post Our story (sorry it is long)
6 hours ago
Michelle McClelland Jenkins replied to Diane S.'s discussion How is your day going?
"It just gets better and better! Ready to ship husband to his sisters. Sell the house. Our youngest DJ can get student loans, and I am out of here...far, far away? (*Had texted kids about my Mom, heart problems, test ran, procedures scheduled for…"
8 hours ago
DI replied to Diane S.'s discussion How is your day going?
"Hi Michelle:  I am so proud of you for standing up for yourself as you don't deserve any of this. I hope it felt good to get that out, so now you and your husband can start fresh with what you have to deal with.  My heart goes out to…"
9 hours ago
Michelle McClelland Jenkins replied to Diane S.'s discussion How is your day going?
"**SENT THIS TEXT OUT TO HUSBAND'S SIBLINGS, SON AND DAUGHTER-INLAW...ZERO RESPONSE! "Hello, If you haven't heard already, I am sure you will soon. This is my response to it all M "After learning that you all knew...That's…"
10 hours ago
Profile IconJayaprakash S, Karen Besser and AtanasiaMuatabu joined Careliving Community
14 hours ago
Judy commented on Heather Terrell's blog post Our story (sorry it is long)
"I completely understand.  My husband is 44 and had a stroke at 43.  I am also 44 and we have two kids 14 and 16.  Life is completely different now.  David is able to walk and go to the bathroom on his own so we are very lucky.…"


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Not another one

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression. Last reply by Laura 4 hours ago. 3 Replies

The CNA who is with my Dad while he recovers from his stroke called me tonight before she left in concern for my mom saying she has been very unsteady and at times struggles to find her words. My mom…Continue

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Michelle McClelland Jenkins 8 hours ago. 6841 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

Be aware of Seizures..... Please

Started by teresa santana in Tell Your Story, Get Support. Last reply by Julie Stoneberger on Wednesday. 12 Replies

Hello, I just want to share what happened to us last night also bring awareness to all about seizures. My husband stroke happened 7 month ago and About a month ago I found him in a catatonic state,…Continue

Activity ideas please

Started by Laura in Care Strategies. Last reply by Laura on Tuesday. 3 Replies

Looking for tips on activities to fill the days!  My mother is 63 years old, had a very large ischemic stroke on the Left side of her brain.  She needs help walking with a walker, limited use of…Continue


Medical Mishap??

Posted by Toni on April 11, 2014 at 6:52pm 1 Comment

My mom was a vibrant, young, dependent person at the age of 79.  She had limited health issues and took meds for high blood pressure and a-fib which included coumadin.  My mom also was diagnosed over 20 yrs ago with a small cancerous spot in her left eye.  In 2013 her eye dr said that the spot in her eye had thickened and that she should be treated with a radiation plaque (which she did 20 yrs ago when it first happened).  So we decided that she should have the surgical procedure.  She got…


insurance merry-go-round...

Posted by Stephanie Juarez on April 11, 2014 at 10:31am 4 Comments

It's been 4 months since my boyfriend suffered a massive stroke, well, actually 4 strokes.  He had a large bleed on the right, a smaller bleed on the left and two in the Cerebellum.  He is only 41 years old.  They suspect that untreated Hypertension was the main cause.  My understanding, from one of his attorneys is that the doctors said he wouldn't live past 30 days.  He is paralyzed on his left side, arm and leg, (although, the toes have started wiggling on demand). And until last week…


And so it ended...

Posted by Barbara Weill Greenberg on April 11, 2014 at 5:46am 3 Comments

I stopped writing months ago when everything seemed to go bad. He was yelling at me, ordering me around, even insisting that I call the cardiologist who is very caring and an excellent doc, and tell him to change the med dose. When I wouldn't call, he tried it insist I change the Coumadin dose on my own. No way. His reasoning went downhill, as did his physical progress. He talked less and less. He couldn't sit straight in his chair and drooled constantly although the ST told him he had to… Continue

One year and stroke

Posted by Erin on April 8, 2014 at 2:35pm 2 Comments

This Saturday is mine and Mark’s one year wedding anniversary and in three weeks it will be the one year anniversary of his first stroke. I can’t believe how much our lives have changed in one year. 

When my husband was 31 he had an MRI (for another medical issue) and they found an AVM in his cerebellar region.  Since he was young the doctors said it was best to treat the AVM. They said there was less than a 5% chance or complications (including stroke) with gamma knife irradiation. …


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