Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.




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sophia nichol is now a member of Careliving Community
Mindy Rosenberg is now a member of Careliving Community
Marsha D replied to Admin's discussion Help Us Get to Know You
"Marry Ann, although improvement occurs most rapidly in the early months, that doesn't mean it stops. My husband's stroke was 5 years ago. We've recently noticed that he can now lift and lower toes on left foot. Neither of us ever gave…"
Profile IconMiles Gavin-Taffel, Jane, bella martinez and 4 more joined Careliving Community
Heidi Barker replied to Tracy's discussion Thalamic Stroke
"I came to help out with my sister. She had a stroke March 11 and got to come home April 18th. I am all new to this as well. I found this group first but have found the Flint Rehab and Stroke Therapy group on Facebook to be much more reaponsive. They…"
Giselle Norris replied to Admin's discussion Help Us Get to Know You
"My husband had a stroke Christmas eve 2008. It was located in his right frontal lobe. He was in ICU for 10 days due to nueroligist watching 2 other spots in his brain. This doctor told us there was nothing more that could be done. Husband was having…"
Profile IconMaureen Howaniec, Barbara and Kemah Blair joined Careliving Community
Apr 21
Janice Kohler replied to Janice Kohler's discussion Need help! as the caregiver.
Apr 21


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Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Marsha D on Tuesday. 1111 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Thalamic Stroke

Started by Tracy in Care Strategies. Last reply by Heidi Barker on Tuesday. 1 Reply

Hi All,I am the caregiver for my Mom, age 61 who had a bilateral stroke in the thalamus back in January 2017. This whole stroke caregiving thing is new and really hard. I had to quit my job to care…Continue

Tags: loss, memory, motivation, thalamus

Need help! as the caregiver.

Started by Janice Kohler in Caregiver Frustration, Anger, Depression. Last reply by Janice Kohler Apr 21. 9 Replies

I am trying to focus on taking care of myself. I see a counselor. He is helping me to restructure my thinking. My husband's brain bleed/stroke in the brain stem will be 2 years in June. I started…Continue

Stress: emotional and physical symptoms, muscles ache, no reserve energy, very depressed, cry at the drop of a hat. Finally, guess what? Vitamin D deficiency!!!!!!

Started by Janice Kohler in Caregiver Frustration, Anger, Depression Apr 21. 0 Replies

OMG! Do the research! Or have the blood test. Some mental health professionals will require this test before prescribing anti-depressants! Continue


My Daughter -My Life

Posted by Jessica on December 14, 2016 at 7:43am 1 Comment

On May 11, 2016 my life forever changed. I got a phone call at midnight waking me from sleep from a friend of my daughter saying the ambulance was taking her to the hospital as she was having a stroke. I had to ask her to repeat this news three times as it was not making sense to me. My daughter Amie is only 32 years old, and had suffered a MAJOR ischemic stroke.

From the ER she was sent to an acute care unit where she remained for 3 1/2 weeks. All this time I stayed by her side, tending… Continue

Stroke #2

Posted by Pat Nixon on October 15, 2016 at 6:35pm 6 Comments

I've been a caregiver since 2011 when my husband had his first massive brain stem stroke.

It left him with complete right side paralysis.

Last Tuesday evening he collapsed in my kitchen. He was rushed to the hospital where they found he has had several new smaller strokes on his brain.

He was also in Afib.

Today he's still in the hospital and his good side is weakened, speech much more slurred and his emotional liability has increased.

Despite all his meds they are…


Grocery Store Trip First Day Back Home

Posted by Barbara Swartz on September 10, 2016 at 2:30pm 1 Comment

He came home from rehab at 10:30, by 2:20 we were out the door.  Had to pick up his prescriptions.  And needed to get some food he could eat.  It was a two hour adventure.  Steve held onto and steared cart with right hand.  We went very slow.  Luckily the parking lot has wide spaces.  And extra wide  between lanes.  So I was only sort of  thinking of getting the car out of the parking space without hitting a car.  But the trip. was stressful.  Can't wait till I can leave Steve at home and go…


Four Years And Counting

Posted by Kathy Swanson on August 18, 2016 at 11:00pm 11 Comments

It's been four years since my husband's devastating stroke that changed our lives forever. I no longer know how to feel. The day to day of caring for a quadriplegic is exhausting and never ending. I have no friends or family left. We are the forgotten. Good help is non existent. He has become my child looking to me for all the answers and I don't have them. I decide when he eats, drinks, baths, and when he goes to the bathroom. I give him his meds and injections I change his… Continue

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