Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.




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Fernando Nacif commented on Mary's blog post Lonely and confused
"Look toward the sky Mary. I'm not saying get religious or perform rituals but just talk to GOD. Keep your sights focused on Him and listen carefully to what He is saying. "
5 hours ago
Profile IconFernando Nacif and Javier Cano joined Careliving Community
5 hours ago
Marsha D replied to Diane S.'s discussion How is your day going?
"Shari, I understand your perception of fhe psychiatrist or psychoogist (which is it?) but why expect lab tech to make the contact? That's not the tech's job. The tech is not your secretary. I agree with fhe others about orher issues."
6 hours ago
Donna Allen replied to Diane S.'s discussion How is your day going?
"Shari, I agree with Donna V in that you may want to see if you can tell him about it at the psychiatrist's office to be on the safe side - unless that would anger him even more, like he'd feel like you tricked him or ganged up on…"
8 hours ago
Rachel Fischoff replied to Diane S.'s discussion How is your day going?
"And I agree with Teresa in being alarmed, Shari, that you are talking about no animal companions or a place to garden. If you give up everything that is you, Shari, you will be miserable and it will be your fault. Total self-sacrifice in a…"
8 hours ago
Rachel Fischoff replied to Diane S.'s discussion How is your day going?
"Donna's idea is excellent! Donna's idea: I can't imagine how you deal with Al. Would it help to make an appointment with the psychiatrist or doctor or ? ....and you both go & then explain to him with a third party present…"
8 hours ago
Shari replied to Diane S.'s discussion How is your day going?
"Marsha believe me when I say the VA psychiatrist is a joke. He wanted Al to go outside and clean chicken coops. Is he nuts???? I told him he couldn't but the man just would not listen to me. Then last time he wanted to know if we were having…"
9 hours ago
Marsha D replied to Diane S.'s discussion How is your day going?
"Shari, you should call the psychologist's office now and schedule an appt. this is not something you should ask the lab tech to do."
9 hours ago


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How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Marsha D 6 hours ago. 8384 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

getting stroke victim to eat

Started by Laura Martin in Tell Your Story, Get Support on Tuesday. 0 Replies

My dad had a hemorrhagic stroke on left side of brain 2 1/2 weeks ago. The tubes have been out of him for a week but he won't eat for nurses. He will for my sister but just a little. He doesn't…Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Marsha D on Sunday. 707 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

anniversary for strokes?

Started by Jan K in Tell Your Story, Get Support. Last reply by Debra Craig Oct 11. 3 Replies

My husband knows the dates of his strokes. Today is the mid-day between his two strokes. I didn't bring it up but simply mentioned, "You've come along way baby!" He responded,"So have you." He still…Continue

Tags: Smiles


Lonely and confused

Posted by Mary on October 19, 2014 at 4:13pm 1 Comment

Hi, my name is Mary. My husband Tom has a bad stroke 4 years ago. He has aphasia and apraxia. He is right side affected. I have always visiting this site but have not shared our story. I am 57 and Tom will be 59. We have been married for 37 yrs. in Nov. I feel so lonely and scared. The communication is so difficult. He just ignores me. I have tried to do the best job I could. I left my job because they wouldn't let him come home unless he had 24/7 care. He can drive. I had both vehicles… Continue

I got sick and needed help

Posted by Erin on October 18, 2014 at 9:24am 0 Comments

Yesterday morning I woke up with the worst abdominal pain.  I was in so much pain I couldn't get out of bed.  I tried and I felt like I was going to pass out. I was dizzy, weak, and felt like throwing up.  The only thought running through my head was that I couldn't take care of Mark.  My husband couldn't take care of me and I couldn't help him out of bed. I know we have all felt this at some point and it's scary.  We needed help.

We called his Dad... no answer.  We called his mom...…


Dodging Conversation

Posted by Elizabeth on October 5, 2014 at 10:36pm 1 Comment

Last week my husband started a full garbled conversation in the middle of the night. I couldn't understand what he was talking about, in part because his speech is still very slurred combined with me waking from basically a dead sleep. Since it is rare for me to be able to get any sleep these days I told him to just try to close his eyes, relax & get some sleep. About 4hrs later I finally had to get up from my air mattress in his room to sleep in my bedroom. I am still sleeping here &… Continue

Thank God every day

Posted by Jan K on September 29, 2014 at 6:13pm 0 Comments

My husband had his first stroke 10/8/13. It looked like a stroke so I called 911. The neurologist thought it was a tia because everything seemed to come back within an hour. The scan showed differently. They ran other tests and found a hole in his heart. They signed us up for a study so we could hopefully get it closed. Jeff was the perfect candidate - he was 52, his last physical a year prior had awesome results, and he had no prior medical issues. When we were in the process of being…


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