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Diane Bianculli replied to Rebecca's discussion That Was Then
"I miss making Thanksgiving dinner with him.  I miss our special thanksgiving prayers at the table.  I miss him so much all the time but the holidays are so more heart breaking.  Yet, I'm going to see him tonight in the LTC…"
Wednesday
Diane Bianculli replied to Barbara Swartz's discussion Giving too much of my life to husband.
"You never know how strong your are until being strong is the only choice you have.  Through adversity, God introduces you to yourself. Boyfriend had massive hemorrhagic stroke 4 years ago.  he is totally paralyzed on the left, in a long…"
Wednesday
Diane Bianculli replied to Louis Santoro's discussion anyone need prayer?
"Pastor Lou:  A few years back you responded to me in my time of trouble with such kind, thoughtful, comforting words.  I was depressed, sad, anxious, miserable at the time.  You told me that I was blessed and that God is always with…"
Wednesday
Profile IconBeverly Bizzell and Jim Greenlee joined Careliving Community
Wednesday
Profile IconTraci, Dalia Vazquez, Michelle and 5 more joined Careliving Community
Tuesday
Mary Ann posted a discussion

Happy Thanksgiving

Happy Thanksgiving , my careliving friends!   It might not be what we wanted, but we are here.  Thank you for the support, the tears shared and the laughter.  My online family.See More
Nov 24
Pat Young replied to Admin's discussion Help Us Get to Know You
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Nov 22
Heather Prichard replied to Admin's discussion Help Us Get to Know You
"My mom had a stroke in 2011. Her left side is spastic to the point of near paralysis. She valiantly tried to live alone but she began having frequent vaso-vagal syncope episodes. We all decided that it was time for her to come and live with my…"
Nov 22

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Forum

That Was Then

Started by Rebecca in Tell Your Story, Get Support. Last reply by Diane Bianculli on Wednesday. 15 Replies

When my husband ♥ David is asleep, I often gaze at him and silently ask, "Who are you? And what have you done with my husband?"( David and I met and fell in love way back in 1966 ... he was 15 and on…Continue

Giving too much of my life to husband.

Started by Barbara Swartz in Tell Your Story, Get Support. Last reply by Diane Bianculli on Wednesday. 4 Replies

I read this is how you get emotionally drained.  I guess I need to find a way to care about my life as much as I care abouthis.  Because I am sure drained right now.Continue

anyone need prayer?

Started by Louis Santoro in Tell Your Story, Get Support. Last reply by Diane Bianculli on Wednesday. 3 Replies

Hi everyone, it's Pastor Lou, I have been going through some hard times not only caregiving but with my health. I thank God my prostate problems seem to be under control but now I have blood pressure…Continue

Happy Thanksgiving

Started by Mary Ann in Tell Your Story, Get Support Nov 24. 0 Replies

Happy Thanksgiving , my careliving friends!   It might not be what we wanted, but we are here.  Thank you for the support, the tears shared and the laughter.  My online family.Continue

Stories

Stroke #2

Posted by Pat Nixon on October 15, 2016 at 6:35pm 3 Comments

I've been a caregiver since 2011 when my husband had his first massive brain stem stroke.

It left him with complete right side paralysis.

Last Tuesday evening he collapsed in my kitchen. He was rushed to the hospital where they found he has had several new smaller strokes on his brain.

He was also in Afib.

Today he's still in the hospital and his good side is weakened, speech much more slurred and his emotional liability has increased.

Despite all his meds they are…

Continue

Grocery Store Trip First Day Back Home

Posted by Barbara Swartz on September 10, 2016 at 2:30pm 1 Comment

He came home from rehab at 10:30, by 2:20 we were out the door.  Had to pick up his prescriptions.  And needed to get some food he could eat.  It was a two hour adventure.  Steve held onto and steared cart with right hand.  We went very slow.  Luckily the parking lot has wide spaces.  And extra wide  between lanes.  So I was only sort of  thinking of getting the car out of the parking space without hitting a car.  But the trip. was stressful.  Can't wait till I can leave Steve at home and go…

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Four Years And Counting

Posted by Kathy Swanson on August 18, 2016 at 11:00pm 9 Comments

It's been four years since my husband's devastating stroke that changed our lives forever. I no longer know how to feel. The day to day of caring for a quadriplegic is exhausting and never ending. I have no friends or family left. We are the forgotten. Good help is non existent. He has become my child looking to me for all the answers and I don't have them. I decide when he eats, drinks, baths, and when he goes to the bathroom. I give him his meds and injections I change his… Continue

Just Joined

Posted by Andy on August 11, 2016 at 1:38am 0 Comments

Hi.  My name is Andy.  I am 58.  My Mum had a stroke some time between Christmas 2014 and New Year's Eve.  She was discharged to palliative 'end of life' care after a few weeks in hospital.  I got her fast-tracked to a really nice nursing home near her friends, neighbours, family, and ex-colleagues so that we could all say goodbye to her in the last few days of her life.

That was a year and seven months ago.  She is still alive.  She can't speak, or move.  She is in constant pain from…

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