Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



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Stella K. replied to Diane S.'s discussion How is your day going?
"Hello, I tend to read more and not post here. I too am a wife who misses every single day the partner I married. The man who was stolen from me by this thing called Stroke. To Sue K, Lillian V., and Rachel F., ...........Thank you for your posts…"
5 minutes ago
Sue k replied to Diane S.'s discussion How is your day going?
"'tis a shame.  We try our best but the relationship suffers. I mourn so the guy I married. It is a different person that is now is my care. "
6 hours ago
Diane Bianculli replied to Diane S.'s discussion How is your day going?
"Hi Marcia Long: You are not stupid, adolescent, childish, asshole etc.  You are you!! You are a beatuiful woman.  You are an angel.  You are a gift to this earth.  You are special.  You are strong.  You are…"
10 hours ago
Rachel Fischoff replied to Diane S.'s discussion How is your day going?
" Ah Lillian ! Your accurate words remind me of what I've been thinking about all week: We mourn them when they die, but we forget to mourn the earlier loss -- the loss of who they were and what they were to us. They die to us twice. Rachel "
11 hours ago
Donna Allen replied to Diane S.'s discussion How is your day going?
"Lillian, you have said it all and very well....sad but true! "
11 hours ago
DI replied to Diane S.'s discussion How is your day going?
"Sue, the poem you wrote made me cry.  Made me think more of the awful rage within my hubby that he goes through every day.  I wish I could help him deal with this more, but we do the best we can to ease their pain.  Lord, just keep us…"
12 hours ago
Profile IconMary J. and Rosalyn joined Careliving Community
12 hours ago
Sue k replied to Diane S.'s discussion How is your day going?
"My husband is not abusive and is usually very understanding.  However, I believe Stan is reaching a new stage now where he realizes that he will always have these new limitations and 'normal' will never be as it was before.  He…"
20 hours ago


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How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Stella K. 5 minutes ago. 7781 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

I hate these awful medications!

Started by DI in Tell Your Story, Get Support. Last reply by DI yesterday. 5 Replies

Good Morning everyone!I know I have not been on much lately but things just are such a mess right now.  I have been following everyone and want to thank all of you for your stories.  Be they good,…Continue

Feeding tube suggestions

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression yesterday. 0 Replies

We are in the process of having my Dad to start taking his meds orally instead of through the feeding tube. He needs them crushed and tells us they are gross. We have tried in yogurt, applesauce.…Continue

Enough is enough!

Started by Linda Symes in Tell Your Story, Get Support. Last reply by Linda Symes on Sunday. 3 Replies

My husband had his 4th stroke on Mother's Day this year.  Last Tuesday, our 47th anniversary, he had his 5th bleed.  He was taken to the hospital out of state where we were visiting my daughter to…Continue


My strong independent 65 yr old mother!

Posted by Yessica Ayala Vicente on July 17, 2014 at 9:44am 5 Comments

Hello everyone! My name is Yessica, I am new to the site, I am here looking for support and to educate myself so that I can care better for my mother who had a stroke almost a month ago. All this is new to me, but I want to learn as much as I can so that I can help my mother recover. I would also like to give support to others, let them know, they are not alone, we are all here to help each other in one way or another.  So here is my story....  


On June 20, 2014 ... we were…


Dale's Story.

Posted by angel alves on July 8, 2014 at 6:46pm 0 Comments

August 19, 2013 our lives changed forever. My boyfriend of 12 years was turning off the lamp in our room. I was reading a book so I was not paying attention to him. I heard some noise and asked him what he was doing. He didn't respond so I glanced over and he was looking at me strange and the t.v. was tipping over. I asked him again and I knew something was terribly wrong with him. I tried to lay him down on the floor, because he was standing there very stiff. I had to make a choice, leave…


My 79 year old Independent Mom

Posted by Jody on June 25, 2014 at 6:09am 0 Comments

  My incredibly independent mother(79) had to go in for carotid artery surgery on May 5th, 2014. She had a massive stroke while in operation and is now paralyzed on her right side with no movement for 7 weeks, she also lost her speech but is slowly gaining this back. I care for her so much its absolutely devastating to me to see her like this. She has anger outbursts a lot now and keeps saying No No No when she's upset. Also her good side of her body is always restless, she's constantly…


Caregiving has a whole new meaning

Posted by Linda Symes on June 11, 2014 at 5:26pm 2 Comments

My husband suffered his second major stroke on Mother's Day.  This stroke affected cognitive skills which has been harder to deal with.  The mood swings, anger and denial are the daily frustrations we deal with.  What makes it harder is that after 46 years of marriage, he never even raised his voice to me, now blow-ups on his part are a daily occurrence.  Some comprehension is coming back slowly but his insistence that he can drive is a major worry.  Especially since the doctors suspended…


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