Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.

Members

Events

Groups

Latest Activity

Profile IconMarshan Ainsworth, Barbara, Katie Janecek and 9 more joined Careliving Community
yesterday
Jeni Budlong replied to Admin's discussion Help Us Get to Know You
"Hi- My name is Jeni.  I live in the Houston area and I am married with 2 kids.  I work full time as a geophysicist for a small Oil and Gas company.  On or about October 3, my father, who is 75 years old and working full time as a…"
Nov 13
Laura replied to Laura's discussion My mum and dad have both have strokes, I’m caring for them both at 22.
"Thank you so much for the reply from both of you! I will look for those pages today. My mum is currently at home and trying every day to do a little bit more, we have good days and bad days but she has improved significantly. Thank you!"
Nov 13
Barbara Lambert replied to Laura's discussion My mum and dad have both have strokes, I’m caring for them both at 22.
"Laura, This all sounds incredibly difficult and yet you sound like you're coping all right. I'm a little unclear on the status of your mother currently. I suggest, if you use Facebook, that you join some Stroke survivor caregiver groups.…"
Nov 12
Barbara Pollard-Simmons replied to Laura's discussion My mum and dad have both have strokes, I’m caring for them both at 22.
"I hope you get some help with taking care of your parents. My mom had a stroke that affected her left side. I am thankful to have help."
Nov 12
Barbara Pollard-Simmons posted a status
"Had a good with my mom today. She wasn’t depressed."
Nov 12
Laura posted a discussion

My mum and dad have both have strokes, I’m caring for them both at 22.

Hi!I am new to this and don’t really know where to start, when I was 18 my mum had a major stroke after several minor strokes which we all missed. She never was Ill she always just carrier on, I had recently become a mum and my son and my mum had a bond you could only wish for. My son was only one when this happened. My mum spent 3 months in hospital due to them also missing how many minor and major strokes she had experienced. Her speech mobility independence had been stripped from her. Today…See More
Nov 12
Laura replied to Shay Gibson's discussion My wife just had a stroke last week
"Hi!!, I can totally understand this for you, my mum had several minor strokes (which we missed) followed by several major ones. They didn’t even diagnose her for several weeks and even sent her home, the only advice I can give is take it day…"
Nov 12

Photos

  • Add Photos
  • View All

Forum

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Jeni Budlong Nov 13. 1188 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

My mum and dad have both have strokes, I’m caring for them both at 22.

Started by Laura in Tell Your Story, Get Support. Last reply by Laura Nov 13. 3 Replies

Hi!I am new to this and don’t really know where to start, when I was 18 my mum had a major stroke after several minor strokes which we all missed. She never was Ill she always just carrier on, I had…Continue

My wife just had a stroke last week

Started by Shay Gibson in Tell Your Story, Get Support. Last reply by Laura Nov 12. 1 Reply

Hi folks - My 50 year old wife had a massive stroke on Halloween morning.  We are still in the ICU but she is doing better.  No movement on right side and not able to say much. I am just trying to…Continue

disorientation in strange environments

Started by Shaz Davis in Tell Your Story, Get Support Nov 1. 0 Replies

We're two years post-stroke with early signs of vascular dementia. My partner recently went in for respite care at a new facility (it is further away so I wasn't able to visit during his stay).…Continue

Stories

Wet, but not wet?

Posted by Sherene on August 28, 2017 at 12:34am 0 Comments

Hi,

Ever since my mom's stroke, one of her biggest trigger has been the feeling of wet diapers. She wants to be changed, but she is completely dry. When my dad tries to explain to her and show her that she's completely dry, she doesn't believe him. He gets upset and very frustrated and will say: I cannot take this any more.

Does anyone have similar experiences and if yes, what do you do?

Thanks.

Wet, but not wet?

Posted by Sherene on August 28, 2017 at 12:34am 0 Comments

Hi,

Ever since my mom's stroke, one of her biggest trigger has been the feeling of wet diapers. She wants to be changed, but she is completely dry. When my dad tries to explain to her and show her that she's completely dry, she doesn't believe him. He gets upset and very frustrated and will say: I cannot take this any more.

Does anyone have similar experiences and if yes, what do you do?

Thanks.

Hi, After my mom's stroke, her neuro doctor added Keppra as a preventative measure to her long list of medications. I was told and did research that Keppra is to prevent epilepsy/seizure, but has so…

Posted by Sherene on August 22, 2017 at 2:28am 4 Comments

Hi,



After my mom's stroke, her neuro doctor added Keppra as a preventative measure to her long list of medications. I was told and did research that Keppra is to prevent epilepsy/seizure, but has some serious side effects.



Recently, I spoke to her doctors regarding her medications and was informed that since she never had a seizure or epilepsy, she was going to be taken off of Keppra. When she was first weaned, she was displaying severe negative emotions. She would cry for… Continue

Reluctant Acceptance of a Changed life

Posted by Joan Hall on August 19, 2017 at 12:46pm 3 Comments

My name is Joan.  And I am a Caregiver.  It has been almost five years since my husband’s final major stroke.  Time has passed, but struggles continue.  I have been forced into a place of reluctant acceptance.  All that had once been normal has vanished, leaving a twisted version of “our happily ever after.”  My husband has no memory of who he once was (I wish I was that lucky).  John is not able to miss what he does not remember.  But unfortunately, I do remember.  I want to cry for him,…

Continue
 
 
 

© 2017   Created by Admin.   Powered by

Badges  |  Report an Issue  |  Terms of Service