Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.

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Profile IconThomas Bianchi, STEPHANIE Wilkes and Julie Golden joined Careliving Community
11 hours ago
Shari replied to Diane S.'s discussion How is your day going?
"Yeah Mary Anne. Yesterday he yelled at me that I forgot to give him his 2:00 meds. It was 8:00. Maybe he can lick envelopes."
16 hours ago
Mary Ann replied to Diane S.'s discussion How is your day going?
"I love when someone or the state feels they need to see if you can work.  My feeling is if you think they can...fine...what time will you like them to start for you?  Oh,  give them extra time, they wander or get lost or forget what…"
20 hours ago
Lillian Valdez replied to Diane S.'s discussion How is your day going?
"Yup, ditto Mary Ann, enjoyed the rant, sounds so familiar - Not your first rodeo huh?  Liked that one.  We had issues with the sleep apnea equipment too, finally it was too expensive for us to use since my husband ripped it off his face…"
20 hours ago
Shari replied to Diane S.'s discussion How is your day going?
"Cindy said-----"Im pretty lucky with Ike's mental capacity. His cognitive skills are excellent and so is his comprehension. What he is missing is sustained focus, multi tasking and organizational skills. Before his stroke, he wasn't…"
20 hours ago
Donna Vanzant replied to Julie Stoneberger's discussion Say it isn't so.....
"Kathleen..I'm not sure how long or how many sessions Medicare pays for right after the first stroketherapy because my husband was not eligible for Medicare when he first had his stroke. He is on Medicare now and they pay for 20 45 minute…"
yesterday
Lillian Valdez commented on Justine Arnold's blog post Lost with no idea where else to turn
"Any possibility of having an independent medical evaluation?  Cognitive-psychologically, if it was in your favor it might help with disability (social security).   This is a very difficult time in every stroke recovery.  The beginning…"
yesterday
Rachel Fischoff replied to Diane S.'s discussion How is your day going?
" EXCELLENT RANT, MARY ANN! I loved every word of it. Rachel "
yesterday

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How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Shari 16 hours ago. 8107 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

Say it isn't so.....

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression. Last reply by Donna Vanzant yesterday. 23 Replies

Just don't know where to begin - the home health speech came last week, spent 20min with my Dad, gave him 1 bite of applesauce, asked him a few questions and concluded that he would not be getting…Continue

Anyone Need Help?

Started by Pastor Louis A. Santoro in Tell Your Story, Get Support. Last reply by Kathleen Chutes on Wednesday. 7 Replies

Hello everyone, It's Pastor Lou, so sorry I've been off line for some time. I've been having a rough go of things, so I prayed to God for help over and over and finally reached out to a Christian…Continue

I hate these awful medications!

Started by DI in Tell Your Story, Get Support. Last reply by DI on Tuesday. 10 Replies

Good Morning everyone!I know I have not been on much lately but things just are such a mess right now.  I have been following everyone and want to thank all of you for your stories.  Be they good,…Continue

Stories

Lost with no idea where else to turn

Posted by Justine Arnold on September 16, 2014 at 11:13am 1 Comment

I am 34 years old and just graduated college to become a teacher. I still have my certification test to take but cannot find the mindset to complete them. My husband had his stroke last year at the age of 28. They have not found the cause of the stroke and he continues to have what he calls brain fog or dizziness that has hindered his ability to work or dive. Doctors do not know the origin of these symptoms and continue to release us from their care despite the fact that since his original…

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Where to start

Posted by Annalene Pretorius on September 16, 2014 at 7:22am 0 Comments

So I just need to ask where do I start, my mom had a minor stroke a week ago (tia) and her speech is effected in a way that she sometimes can't remember the words or cant get the words out or get them switched around. But now she also gets confused and disorientated. What do I do how do I start? I work full time and She can't drive in the state she is in at the moment. Please help

Wedding blues

Posted by Erin on September 1, 2014 at 9:18am 2 Comments

My cousin who is a year younger than me got married last night.  I went to the wedding and it was beautiful.  During the ceremony I cried like a baby...and then I felt guilt about it.  I was crying 10% out of happiness for this new couple who are starting their life together and 90% out of anger and sadness for lost opportunities that Mark and I will not experience. My mom and a good friend were next to me and each took my hand giving me strength (Mark is in the hospital and could not…

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The new normal after husband' stroke

Posted by Debra Craig on August 29, 2014 at 9:47pm 2 Comments

My sweet husband had a series of strokes about 2 years ago. His were all Ischemic left-side which left his right side of his body quite weak (although now he can walk with a cane) and he has some cognitive issues and Aphasia (which is the most frustrating part). Luckily he has a great sense of humor and through Department of Assisted Rehabilitation was able to receive vocational therapy and now works part-time(all that he has stamina for) at a local Outreach center 2 & 1/2 days a week.…

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