Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.




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AHA/ASA Katie Bahn posted a discussion

Careliving Community on the Support Network is Open

The CarelivingSM Community is moving to the American Heart Association® and American Stroke Association’s® Support Network on Aug. 22. The network helps you connect with caregivers, find…See More
6 hours ago
Kathy replied to Diane Bianculli's discussion 7 years post stroke
"Wonderful news!!"
Jul 24
Kathy replied to Admin's discussion Help Us Get to Know You
"Hi Callie, Congratulations on your son's kindergarten accomplishments, all of which occurred in what had to have been a hugely challenging year for your family.   The one thing that spoke to me in your post was how awful you felt that…"
Jul 22
Profile IconDebbie Romano, Katie, Stacy and 1 more joined Careliving Community
Jul 22
Michele Wasserman commented on Kayla's blog post Feeling Isolated and Guilty
"Hi Kayla, Don’t feel guilty! Call her often and go see her when you can. I’m sure that she appreciates all you’ve done for her!"
Jul 19
Donna Allen replied to Diane S.'s discussion Goodbye, and thank you!
"Diane is so right.  This thread created friendships.  A way for us to share stories, get advice, vent, get emotional support - was a lifesaver at times.  I've become inactive too - as my husband's health worsened it was all…"
Jul 19
Donna Allen replied to Admin's discussion Help Us Get to Know You
"Callie, my heart goes out to you and your family.  It's difficult dealing with these health issues at any age but I can't begin to imagine what you are going through having your sweet little child dealing with what should be adult…"
Jul 19
AHA/ASA Katie Bahn posted a discussion

Careliving Community is Joining the American Heart Association’s Support Network

 Thank you for being a member of the National Stroke Association’s® CarelivingSM Community.As you’re aware, many of the National Stroke Association’s programs and services were moved to the American Stroke Association®, a division of the American Heart Association® last fall. Now, we’re excited to announce that the Careliving Community will be moving to the American Heart Association and American Stroke Association’s…See More
Jul 19


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Careliving Community on the Support Network is Open

Started by AHA/ASA Katie Bahn in Tell Your Story, Get Support 6 hours ago. 0 Replies

The CarelivingSM Community is moving to the American Heart Association® and American Stroke Association’s®…Continue

How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Brenda Williams Aug 8. 9984 Replies

This is the place to share your thoughts and tell us all how your day is going!Original message dated 06/12/12:I must admit, when I found out about this Careliving site, I had such high hopes. Wow, a…Continue

7 years post stroke

Started by Diane Bianculli in Tell Your Story, Get Support. Last reply by Kathy Jul 24. 5 Replies

My boyfriend 7 years post massive hemorrhagic stroke, has started moving his paralyzed left leg, and bending the knee 2 days ago.  yesterday he regained feeling in his foot. With God all things are…Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Kathy Jul 22. 1250 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue


Feeling Isolated and Guilty

Posted by Kayla on June 17, 2019 at 10:23pm 1 Comment

My grandma had a stroke a month ago. Since then I have been struggling to keep it together. 

I spent every day and night at her bedside in the hospital leaving for no more than 10 hours total over a 6 day period. Then 12 hours every day I could at the rehab hospital. She made me go back to work after a few days in rehab. I live 2.5 hours from where she was hospitalized. Leaving was heartbreaking.  

Now I struggle with who I can  turn to in moments I need to vent…


Finally progress 9 months after stroke

Posted by N Hansen on June 4, 2019 at 8:26pm 1 Comment

Hello all. My mother, 89 years old, had a stroke (bleeding from a giant brain aneurysm) in August, 2018. She was completely bedridden for five months until January, and developed a stage 4 wound because she couldn't move and caregivers didn't turn her often enough. We brought her to live at my house with caregivers, the wound is now nearly healed, and eventually we were able to get her up into a wheelchair using a Hoyer lift for a few hours each day. In May, we moved her to a better…



Posted by Jessie on June 4, 2019 at 12:14pm 1 Comment


My boyfriend had a stoke 9 days ago. He is currently in in patient rehab. It's extremely hard for both of us. He is normally a very active person and now he is frustrated because he can't do anything. I feel bad that I can't really help him feel better. My entire life I have always been the person taking care of things and making everything better with my mom being sick. Right now I just feel so helpless because I can't help my boyfriend feel better. I can't fix anything. I…


Helping a friend with dementia after stroke

Posted by Dana Adams on June 2, 2019 at 2:05pm 1 Comment

My friend is a miracle. First that she survived at all. Her physical recovery is maybe better than on track. She broke her hip last month and is up and walking often without the aid of her walker. Her vision is impaired but her hearing, speech and movement are close to normal considering. Unfortunately she has dementia and is beset with irrational fears. I didn't know her pre stroke so I'm not sure if the dementia is entirely stroke related. Her family reports some signs pre stroke but her… Continue

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