Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



Latest Activity

Profile IconChristy Jackson and Michelle joined Careliving Community
24 minutes ago
Profile IconOsob Samantar, Jackie Hansen and Diana joined Careliving Community
Patty pplombon liked Stacey Brule's discussion Higher Cognitive Thinking Apps or Websites
Debra Craig replied to Diane S.'s discussion How is your day going?
"Pat, So happy for the positive results! Please keep that great sense of humor and please keep letting people help, remember, even though us strong people don't like to have help it is a blessing to the people who are helping us and we cannot…"
Donna Allen replied to Diane S.'s discussion How is your day going?
"Pat, I'm so glad to hear your positive update.  You are such a trouper and a blessing to everyone you meet - as evidenced by how you brought everyone together in that waiting room and made the wait better for all.  You continue to be…"
Pat Nixon replied to Diane S.'s discussion How is your day going?
"Mary Ann, I got the best advice before my needle loc. from one of the nurses.....she said if you can help it don't look ! And I'm glad I didn't because I would have done the same as you :-) As it was I could vaguely see it in my…"
Mary Ann replied to Diane S.'s discussion How is your day going?
"Pat,  So nice to hear good news!   I was reminded of going for a biopsy a few years ago and having to have the needle localization.  I am a baby about needles at times.  So they get me topless to grid out my breast and I am…"
Pat Nixon replied to Diane S.'s discussion How is your day going?
"Hi everybody, I'm back  :-) My surgery went very well. My surgeon and everyone I encountered were wonderful. Before my surgery I had to have a Needle Localization which required me to be a patient at a comprehensive breast cancer detection…"


  • Add Photos
  • View All


How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Debra Craig on Sunday. 9729 Replies

This is the place to share your thoughts and tell us all how your day is going!Original message dated 06/12/12:I must admit, when I found out about this Careliving site, I had such high hopes. Wow, a…Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Erin Sep 24. 824 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Do seizures stop after a choking hazard caused brain stroke?

Started by Manorama gautam in Tell Your Story, Get Support Sep 23. 0 Replies

My sister’s 1.5 year old daughter was suffering from fever and doctor diagnosed it as viral fever.  According to Dr. it could last for 7-10 days. But child lost appetite hence as a matter of concern…Continue

Prayer Needed

Started by Pastor Louis A. Santoro in Tell Your Story, Get Support. Last reply by Pastor Louis A. Santoro Sep 21. 2 Replies

Greetings everyone in Jesus' Name, It's Pastor Lou, So sorry I haven't wrote for some time now. The reason is I haven't been doing and acting the way I should, so not only does my wife need a miracle…Continue



Posted by Kathy Swanson on September 17, 2015 at 4:16pm 1 Comment

I was at store walking behind this couple who would be about our age and he reached out and took her hand. I felt such intolerable pain watching them because I will never experience this again with my husband. It's funny what you miss after the stroke. Holding hands, the way he puts his hand on the small of your back, setting across the table sharing food and conversation, a goodby kiss in the morning. Sometimes the loss of what we were is unbearable.

I catch myself making plans for… Continue


Posted by Kathy Swanson on August 4, 2015 at 7:09pm 4 Comments

On August 19, 2015 it will be three years since the brainstem stroke that devastated our lives. My husband, Ron, will never be the same again. He is now a quadriplegic with all that implies.

Three years ago when we were in ICU , acute care and rehab I wish their was someone anyone who could have told me what I would be facing in the months and years to come. We were sent home with a bed and a lift not even a wheel chair. I received no training did not know what a UTI was or what to…


Unanswered Questions

Posted by N. Cep on July 29, 2015 at 4:39pm 0 Comments

My mother had an aortic dissection 2 years ago (March, 2013 when she was 62). She collapsed on a ski slope. She had an emergency valve replacement that was successful. A year and a half later, she had her descending Aorta repaired more extensively with a two part surgery that involved a second open heart surgery, a gore-tex lining to her aorta, and a few months with a wound vac. 2 months after the end of that surgery, she got shining reviews from her surgeon and was ready to live life…


What is the wrong thing to say?

Posted by N. Cep on July 28, 2015 at 11:44am 0 Comments

1) The wrong thing to say is anything that implies that you don't understand how completely my world was turned upside down by my mother dying. 

Don't ask my professional and geographical plans, at least not to start a conversation. These are hard questions, even when I'm not dealing with grief; Even when my world has not just been turned upside down. You'll probably know what comes next soon after I know what comes next.

2) The wrong thing is anything that implies that I…


© 2015   Created by Admin.   Powered by

Badges  |  Report an Issue  |  Terms of Service