Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.

Members

Events

Groups

Latest Activity

Kathy McComber replied to Admin's discussion Help Us Get to Know You
"Thank you Jan. Yes, we are familiar with the Amplatzer device. They were reluctant to do the procedure for Jess originally due to her being young, and so low dose aspirin was the prescribed treatment. However, now with the aneurysm, they will…"
1 hour ago
Jan K replied to Admin's discussion Help Us Get to Know You
"Hello Kathy. My husband had two strokes a few years ago due to a PFO. We have a device in the USA called an Amplatzer PFO Occluder.The dr.uses a non-invasive technique to install this in the heart which closes the hole. Patients are typically sent…"
6 hours ago
Michelle McClelland Jenkins posted a story

What I wouldn't give...

When our loved one had their Stroke, most of our lives changed forever... First we are receiving information and quickly trying to make informed decisions. Hopefully the right ones! Hours become days. Days become months. Months become years. Then comes the really hard part. Realizing that we too, along with our loved one were virtually forever impacted by the Stroke. Paralyzed, each of us, in different ways. Both of us yearning for the lives and freedoms that we too have lost, again in…See More
8 hours ago
Doug Greenlee replied to Tracy's discussion Thalamic Stroke
"Tracy, Oh my goodness.  Your situation sounds so like mine.  I could find not much on thalamic stroke.  What you describe is what I see in my wife. Unknown to us, my wife had a right side mediodorsal thalamic stroke some time ago,…"
12 hours ago
Kathy McComber replied to Admin's discussion Help Us Get to Know You
"Hi, thank you for allowing me to be part of this forum :) My daughter had her first stroke (apparently two different types almost simultaneously) at the age of 23 and has gone on to have at least one other. She has been left with residual peripheral…"
21 hours ago
Profile Iconpeppermint pattie, Kathy McComber and Diann kemp joined Careliving Community
yesterday
Julie is now a member of Careliving Community
Monday
Louis Santoro replied to Louis Santoro's discussion anyone need prayer?
"my brother in Christ, my heart and prayers go out to you, the best I can do is pray and Jesus said if 2 of us agree touching anything it will be granted so ,let us pray in agreement, I know most of what you say, it has been over 6 years ago my wife…"
Saturday

Photos

Loading…
  • Add Photos
  • View All

Forum

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Kathy McComber 1 hour ago. 1121 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Thalamic Stroke

Started by Tracy in Care Strategies. Last reply by Doug Greenlee 12 hours ago. 2 Replies

Hi All,I am the caregiver for my Mom, age 61 who had a bilateral stroke in the thalamus back in January 2017. This whole stroke caregiving thing is new and really hard. I had to quit my job to care…Continue

Tags: loss, memory, motivation, thalamus

anyone need prayer?

Started by Louis Santoro in Tell Your Story, Get Support. Last reply by Louis Santoro on Saturday. 6 Replies

Hi everyone, it's Pastor Lou, I have been going through some hard times not only caregiving but with my health. I thank God my prostate problems seem to be under control but now I have blood pressure…Continue

How does the caregiver survive?

Started by Nancy in Caregiver Frustration, Anger, Depression. Last reply by Emuobor Egone May 19. 40 Replies

Do you ever wonder what might make you happy?  When was the last time you felt happy, loved or supported?  I realize I am whining and feeling so "poor me" at the moment.  I'll admit it doesn't happen…Continue

Stories

What I wouldn't give...

Posted by Michelle McClelland Jenkins on May 25, 2017 at 11:30am 0 Comments

When our loved one had their Stroke, most of our lives changed forever... First we are receiving information and quickly trying to make informed decisions. Hopefully the right ones! Hours become days. Days become months. Months become years. Then comes the really hard part. Realizing that we too, along with our loved one were virtually forever impacted by the Stroke. Paralyzed, each of us, in different ways. Both of us yearning for the lives and freedoms that we too have lost, again in… Continue

My Daughter -My Life

Posted by Jessica on December 14, 2016 at 7:43am 1 Comment

On May 11, 2016 my life forever changed. I got a phone call at midnight waking me from sleep from a friend of my daughter saying the ambulance was taking her to the hospital as she was having a stroke. I had to ask her to repeat this news three times as it was not making sense to me. My daughter Amie is only 32 years old, and had suffered a MAJOR ischemic stroke.

From the ER she was sent to an acute care unit where she remained for 3 1/2 weeks. All this time I stayed by her side, tending… Continue

Stroke #2

Posted by Pat Nixon on October 15, 2016 at 6:35pm 6 Comments

I've been a caregiver since 2011 when my husband had his first massive brain stem stroke.

It left him with complete right side paralysis.

Last Tuesday evening he collapsed in my kitchen. He was rushed to the hospital where they found he has had several new smaller strokes on his brain.

He was also in Afib.

Today he's still in the hospital and his good side is weakened, speech much more slurred and his emotional liability has increased.

Despite all his meds they are…

Continue

Grocery Store Trip First Day Back Home

Posted by Barbara Swartz on September 10, 2016 at 2:30pm 1 Comment

He came home from rehab at 10:30, by 2:20 we were out the door.  Had to pick up his prescriptions.  And needed to get some food he could eat.  It was a two hour adventure.  Steve held onto and steared cart with right hand.  We went very slow.  Luckily the parking lot has wide spaces.  And extra wide  between lanes.  So I was only sort of  thinking of getting the car out of the parking space without hitting a car.  But the trip. was stressful.  Can't wait till I can leave Steve at home and go…

Continue
 
 
 

© 2017   Created by Admin.   Powered by

Badges  |  Report an Issue  |  Terms of Service