Careliving Community aims to empower caregivers to care for themselves by providing a place for discussion, connection and support.



Latest Activity

Ann Hunt replied to Diane S.'s discussion How is your day going?
"Cory, as a fellow athlete, I understand how that would hurt.  I read somewhere (on this site, probably) that someone who had a stroke, and is struggling for control of the life they once had, would say something like this - not out of meanness,…"
5 hours ago
Cory Bee replied to Diane S.'s discussion How is your day going?
"Today was really tough it was the first major holiday since my dad's stroke (that happened Christmas morning) he was quite upset to say the least and seemed to be thinking more of the past. It has been hard on everyone but he doesn't seem…"
5 hours ago
Julie Stoneberger replied to Diane S.'s discussion How is your day going?
"Ann I couldn't agree with you more. Today was the 1st time we took my dad out to someone's house since his stroke and it was just that - back then as opposed to now. It was hard. Like you my sister in law kept putting things on facebook of…"
5 hours ago
Ann Hunt replied to Diane S.'s discussion How is your day going?
"I have come to dislike holidays - they seem to emphasize the gap that is between "us now" and "us as we used to be".  Any plain old weekend and frozen pizza would go unnoticed -put that on for Easter dinner and everyone…"
6 hours ago
Julie Stoneberger replied to Julie Stoneberger's discussion Say it isn't so.....
"Marsha what kind of stroke did your husband have and where did it occur? They said it would be hard to rehab so I wanted to see where his was. My dad had a left MCA 10 months ago. So the water class worked for him? There is a disability center near…"
7 hours ago
Julie Stoneberger posted discussions
7 hours ago
Diane S. replied to Diane S.'s discussion How is your day going?
"Hi everyone! Just a kind note here to wish everyone a calm, hopefully tolerable, maybe even "Happy" Easter! We really aren't doing anything -- frozen pizza for me, Jevity in the feeding tube for him. Such is life post-stroke. And…"
11 hours ago
Shari replied to Diane S.'s discussion How is your day going?
"Rachel: I would jump ship in a heartbeat! I wish I didn't feel this way, during his time of need, I only wish he had been a decent man before his stroke. I didnt choose well."
16 hours ago


  • Add Photos
  • View All


How is your day going?

Started by Diane S. in Tell Your Story, Get Support. Last reply by Ann Hunt 5 hours ago. 6863 Replies

This is the place to share your thoughts and tell us all how your day is going!I am so glad so many people have come back to this site and new people have joined since I posted this original…Continue

Say it isn't so.....

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression. Last reply by Julie Stoneberger 7 hours ago. 21 Replies

Just don't know where to begin - the home health speech came last week, spent 20min with my Dad, gave him 1 bite of applesauce, asked him a few questions and concluded that he would not be getting…Continue

Any thoughts on this

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression 7 hours ago. 0 Replies

Big discussion going on right now to if my parents should go to Idaho for the summer with my brother. We have been told that those on blood thinners should not live where it is hot - we live in AZ.…Continue

How do you do it

Started by Julie Stoneberger in Caregiver Frustration, Anger, Depression 7 hours ago. 0 Replies

For those of you who have been caregivers for many many years here's a shout out to you. I don't know how you do it. My Dad has only been home from the hospital since October and I find myself more…Continue


Angels at Easter!

Posted by DI on April 18, 2014 at 12:18pm 0 Comments

I just want to Wish everyone a Happy and Blessed Easter! Spring has sprung! I just looked at my mothers plant that has not blossomed all year. It is an African violet. My mother passed away 7 years ago. So when I looked at it a little while ago, imagine the feeling when I saw that it has buds over night. Just in time for Easter. My moms name was Esther so we always teased her and called her Easter this time of year. She was a wonderful and giving person. So she has just proven to me that she…


Medical Mishap??

Posted by Toni on April 11, 2014 at 6:52pm 1 Comment

My mom was a vibrant, young, dependent person at the age of 79.  She had limited health issues and took meds for high blood pressure and a-fib which included coumadin.  My mom also was diagnosed over 20 yrs ago with a small cancerous spot in her left eye.  In 2013 her eye dr said that the spot in her eye had thickened and that she should be treated with a radiation plaque (which she did 20 yrs ago when it first happened).  So we decided that she should have the surgical procedure.  She got…


insurance merry-go-round...

Posted by Stephanie Juarez on April 11, 2014 at 10:31am 4 Comments

It's been 4 months since my boyfriend suffered a massive stroke, well, actually 4 strokes.  He had a large bleed on the right, a smaller bleed on the left and two in the Cerebellum.  He is only 41 years old.  They suspect that untreated Hypertension was the main cause.  My understanding, from one of his attorneys is that the doctors said he wouldn't live past 30 days.  He is paralyzed on his left side, arm and leg, (although, the toes have started wiggling on demand). And until last week…


And so it ended...

Posted by Barbara Weill Greenberg on April 11, 2014 at 5:46am 3 Comments

I stopped writing months ago when everything seemed to go bad. He was yelling at me, ordering me around, even insisting that I call the cardiologist who is very caring and an excellent doc, and tell him to change the med dose. When I wouldn't call, he tried it insist I change the Coumadin dose on my own. No way. His reasoning went downhill, as did his physical progress. He talked less and less. He couldn't sit straight in his chair and drooled constantly although the ST told him he had to… Continue

© 2014   Created by Admin.   Powered by

Badges  |  Report an Issue  |  Terms of Service