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Christine Kerr replied to Lisa Morse's discussion Compensation for Caregiver?
"I was told by the social security office to obtain a prescription from our GP for home health care. Then contact a service and they can put you on their payroll. They do the paperwork and then pay you. Sounds dodgy to me but the social security…"
16 minutes ago
Christine Kerr replied to sue's discussion First week on hospice
"Hi Sue, how are you? Have you been able to adjust and find some peace? Thinking of you. Christine"
24 minutes ago
Marsha D replied to Admin's discussion Help Us Get to Know You
"Alison,, I don't view what you're doing as complainin., You're simply describing where you are on the journey.  "
Angela L. replied to Admin's discussion Help Us Get to Know You
"I would like to post an update to my original entry. My 61 year old husband had his stroke on October 9 and was discharged from the hospital on November 3, 2015. He is doing very well. His swallowing problems have resolved. He will get outpatient…"
Teresa V replied to Admin's discussion Help Us Get to Know You
"   Happy Thanksgiving everyone,            I hope all of you have a peaceful day with your loved ones. My daughter will not be with us for the first time so my family will feel incomplete.…"
Louise Sullivan replied to Admin's discussion Help Us Get to Know You
"Christine, I ask myself the same questions as you. My husband had his stroke at 58, 6 months ago. I had already retired but did not expect this was the way I would be spending it. We a have a single family home, which I know he does not want to move…"
Donna Vanzant replied to Admin's discussion Help Us Get to Know You
"Happy Thanksgiving to all...I've been following the posts and just haven't added my thoughts. My husband had his stroke June 2009 when he was 61. He was at the point of not making it but took a turn for the better and stayed with us. He…"
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Compensation for Caregiver?

Started by Lisa Morse in Care Strategies. Last reply by Christine Kerr 16 minutes ago. 3 Replies

Hi everyone.  We live in Florida, about 20 mins north of Daytona Beach.  My sister had a stroke about 3 weeks ago and she is home now, but cannot move her right hand and having trouble with speech…Continue

Tags: caregiver, compensation

First week on hospice

Started by sue in Tell Your Story, Get Support. Last reply by Christine Kerr 24 minutes ago. 2 Replies

No huge change in husbands condition but is slowly declining, so hospice was recommended. As sole caregiver, I feel more stressed because of the responsibility for life and death decisions. No more…Continue

Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Marsha D yesterday. 853 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

How does the caregiver survive?

Started by Nancy in Caregiver Frustration, Anger, Depression. Last reply by Kathy on Wednesday. 23 Replies

Do you ever wonder what might make you happy?  When was the last time you felt happy, loved or supported?  I realize I am whining and feeling so "poor me" at the moment.  I'll admit it doesn't happen…Continue



Posted by Kathy Swanson on September 17, 2015 at 4:16pm 4 Comments

I was at store walking behind this couple who would be about our age and he reached out and took her hand. I felt such intolerable pain watching them because I will never experience this again with my husband. It's funny what you miss after the stroke. Holding hands, the way he puts his hand on the small of your back, setting across the table sharing food and conversation, a goodby kiss in the morning. Sometimes the loss of what we were is unbearable.

I catch myself making plans for… Continue


Posted by Kathy Swanson on August 4, 2015 at 7:09pm 4 Comments

On August 19, 2015 it will be three years since the brainstem stroke that devastated our lives. My husband, Ron, will never be the same again. He is now a quadriplegic with all that implies.

Three years ago when we were in ICU , acute care and rehab I wish their was someone anyone who could have told me what I would be facing in the months and years to come. We were sent home with a bed and a lift not even a wheel chair. I received no training did not know what a UTI was or what to…


Unanswered Questions

Posted by N. Cep on July 29, 2015 at 4:39pm 0 Comments

My mother had an aortic dissection 2 years ago (March, 2013 when she was 62). She collapsed on a ski slope. She had an emergency valve replacement that was successful. A year and a half later, she had her descending Aorta repaired more extensively with a two part surgery that involved a second open heart surgery, a gore-tex lining to her aorta, and a few months with a wound vac. 2 months after the end of that surgery, she got shining reviews from her surgeon and was ready to live life…


What is the wrong thing to say?

Posted by N. Cep on July 28, 2015 at 11:44am 0 Comments

1) The wrong thing to say is anything that implies that you don't understand how completely my world was turned upside down by my mother dying. 

Don't ask my professional and geographical plans, at least not to start a conversation. These are hard questions, even when I'm not dealing with grief; Even when my world has not just been turned upside down. You'll probably know what comes next soon after I know what comes next.

2) The wrong thing is anything that implies that I…


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