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Tara Marie Smith replied to Admin's discussion Help Us Get to Know You
"Thanks.  I've seriously considered leaving .I guess I'm still hoping things will get better.  I bought a smiley face bracelet to remind me to focus on the positive.  But it's still a struggle.  Christine Kerr said:"
2 hours ago
Tara Marie Smith replied to Admin's discussion Help Us Get to Know You
"Hi Doug,  I think the emotional and mental changes in our loved ones can be the hardest to deal with.   With my husband I often feel like I'm dealing with a toddler rather than a 56 year old man.  "
5 hours ago
Christine Kerr replied to Admin's discussion Help Us Get to Know You
"Stand your ground. The therapists told me not to enable him. I am curious if anybody has or thought about leaving. My husband keeps telling me to get out when I am too exhausted to put on a happy face."
5 hours ago
Tara Marie Smith replied to Admin's discussion Help Us Get to Know You
"Sounds like a lot of you are feeling what I'm feeling.  Frustration.  Anger.  Exhaustion.   A few weeks ago,  I talked to my husband about my need for more rest.  ( I'm suppose to be on partial bed rest for a…"
5 hours ago
Profile IconStacy Magill and jade gardiner joined Careliving Community
6 hours ago
Christine Kerr replied to Janice Kohler's discussion Need help! as the caregiver.
"I know that I am not alone and you share this caretaker life. My husband has physically recovered after 3 strokes minus use of his left hand. But his other issues forced him to retire. We moved from a rural area to a large city to have better access…"
Profile IconBecky Russell, Patrick Morrison, malinda and 6 more joined Careliving Community
Ann Tuggle liked Admin's profile


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Help Us Get to Know You

Started by Admin in Tell Your Story, Get Support. Last reply by Tara Marie Smith 2 hours ago. 1097 Replies

This is a place to introduce yourself to the community. Share a little background about your situation and tell other caregivers your loved one’s stroke story. Talk about what interests you most…Continue

Need help! as the caregiver.

Started by Janice Kohler in Caregiver Frustration, Anger, Depression. Last reply by Christine Kerr yesterday. 3 Replies

I am trying to focus on taking care of myself. I see a counselor. He is helping me to restructure my thinking. My husband's brain bleed/stroke in the brain stem will be 2 years in June. I started…Continue

Expert Speak

Started by Admin in Topic of the Month. Last reply by Staci Blinn Mar 15. 31 Replies

This area is for articles by healthcare professionals and other caregiving topic experts, written exclusively for Careliving℠ Community.Continue

32yo sister had massive stroke

Started by Ariel in Tell Your Story, Get Support. Last reply by Mary Ann Feb 12. 2 Replies

Hello everyone,Last Friday, my 32 year old sister had a massive stroke. She is still in the Neuroscience ICU and will most likely remain there for another week. She had a huge blood clot that blocked…Continue


My Daughter -My Life

Posted by Jessica on December 14, 2016 at 7:43am 1 Comment

On May 11, 2016 my life forever changed. I got a phone call at midnight waking me from sleep from a friend of my daughter saying the ambulance was taking her to the hospital as she was having a stroke. I had to ask her to repeat this news three times as it was not making sense to me. My daughter Amie is only 32 years old, and had suffered a MAJOR ischemic stroke.

From the ER she was sent to an acute care unit where she remained for 3 1/2 weeks. All this time I stayed by her side, tending… Continue

Stroke #2

Posted by Pat Nixon on October 15, 2016 at 6:35pm 6 Comments

I've been a caregiver since 2011 when my husband had his first massive brain stem stroke.

It left him with complete right side paralysis.

Last Tuesday evening he collapsed in my kitchen. He was rushed to the hospital where they found he has had several new smaller strokes on his brain.

He was also in Afib.

Today he's still in the hospital and his good side is weakened, speech much more slurred and his emotional liability has increased.

Despite all his meds they are…


Grocery Store Trip First Day Back Home

Posted by Barbara Swartz on September 10, 2016 at 2:30pm 1 Comment

He came home from rehab at 10:30, by 2:20 we were out the door.  Had to pick up his prescriptions.  And needed to get some food he could eat.  It was a two hour adventure.  Steve held onto and steared cart with right hand.  We went very slow.  Luckily the parking lot has wide spaces.  And extra wide  between lanes.  So I was only sort of  thinking of getting the car out of the parking space without hitting a car.  But the trip. was stressful.  Can't wait till I can leave Steve at home and go…


Four Years And Counting

Posted by Kathy Swanson on August 18, 2016 at 11:00pm 11 Comments

It's been four years since my husband's devastating stroke that changed our lives forever. I no longer know how to feel. The day to day of caring for a quadriplegic is exhausting and never ending. I have no friends or family left. We are the forgotten. Good help is non existent. He has become my child looking to me for all the answers and I don't have them. I decide when he eats, drinks, baths, and when he goes to the bathroom. I give him his meds and injections I change his… Continue

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