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Profile IconBarbara K Cobb and Katie Joanna joined Careliving Community
18 minutes ago
Nancy replied to Nancy's discussion 3 yrs after husbands stroke
"My husband is definitely progressed over the 3 yr period but now he does not want to do therapy at home with me. After seeing ittleman video I understand that the approach I was taking was too structured and seemed like I was trying to be a…"
31 minutes ago
Nancy replied to Nancy's discussion 3 yrs after husbands stroke
"The mark ittleman video was great! I watched last night. I am going to get book. This was a blessing in disguise. Sometimes God sends messages in mysterious ways! This was one of those! I agree with his philosophy & will try this. Every bit imfo…"
10 hours ago
Caitlin Blaser replied to Nancy's discussion How does the caregiver survive?
"I've notice that I go through periods of fulfillment and disappointment. I still and probably will never understand why this happened to my mother but I know it does no good to try and question everything. But those days where you resent…"
18 hours ago
Brenda stutzman replied to Nancy's discussion 3 yrs after husbands stroke
"My heart goes out to you. Our life is filled with so much guilt, when we expected this time of life to be filled with joy and a relaxed life. We are 2 1/2 years out. My husband is 65 now, moderately severe aphasia, almost no use of his right arm,…"
22 hours ago
Profile IconLinda Veres, S.R. , Lizbeth Hoyos and 1 more joined Careliving Community
yesterday
N. Cep posted a story

Unanswered Questions

My mother had an aortic dissection 2 years ago (March, 2013 when she was 62). She collapsed on a ski slope. She had an emergency valve replacement that was successful. A year and a half later, she had her descending Aorta repaired more extensively with a two part surgery that involved a second open heart surgery, a gore-tex lining to her aorta, and a few months with a wound vac. 2 months after the end of that surgery, she got shining reviews from her surgeon and was ready to live life as a…See More
yesterday
Jessica Johnson commented on Jessica Johnson's blog post Stressed out
"Thank you all for the words of encouragement. Since I posted this, we've had some pretty rough times. She had 2 major falls, which resulted in me having to restrain her at night. This was due to her waking up in the middle of the night and…"
yesterday

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3 yrs after husbands stroke

Started by Nancy in Tell Your Story, Get Support. Last reply by Nancy 31 minutes ago. 4 Replies

My husband had his stroke on February 18 3 yrs ago. Presently he still can't communicate due to aphasia/apraxia issues. Has had 3 yrs of therapy for speech pt & ot. Now on Medicare had to stop…Continue

How does the caregiver survive?

Started by Nancy in Caregiver Frustration, Anger, Depression. Last reply by Caitlin Blaser 18 hours ago. 6 Replies

Do you ever wonder what might make you happy?  When was the last time you felt happy, loved or supported?  I realize I am whining and feeling so "poor me" at the moment.  I'll admit it doesn't happen…Continue

Higher Cognitive Thinking Apps or Websites

Started by Stacey Brule in Care Strategies. Last reply by Barbara Lambert yesterday. 9 Replies

My mother had a embolic stroke in her brainstem this past June. She is recovering remarkably but now that she is home from rehab, the VNA that comes to her house doesnt offer speech therapy. Speech…Continue

Slowly losing myself

Started by sue in Tell Your Story, Get Support. Last reply by Brenda stutzman on Wednesday. 1 Reply

Been three years since husbands stroke. Cognition has improved somewhat, but physically refuses to do anything but sit in his chair. Prefers to have meals on a tray, needs help dressing, is…Continue

Stories

Unanswered Questions

Posted by N. Cep on July 29, 2015 at 4:39pm 0 Comments

My mother had an aortic dissection 2 years ago (March, 2013 when she was 62). She collapsed on a ski slope. She had an emergency valve replacement that was successful. A year and a half later, she had her descending Aorta repaired more extensively with a two part surgery that involved a second open heart surgery, a gore-tex lining to her aorta, and a few months with a wound vac. 2 months after the end of that surgery, she got shining reviews from her surgeon and was ready to live life…

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What is the wrong thing to say?

Posted by N. Cep on July 28, 2015 at 11:44am 0 Comments

1) The wrong thing to say is anything that implies that you don't understand how completely my world was turned upside down by my mother dying. 

Don't ask my professional and geographical plans, at least not to start a conversation. These are hard questions, even when I'm not dealing with grief; Even when my world has not just been turned upside down. You'll probably know what comes next soon after I know what comes next.

2) The wrong thing is anything that implies that I…

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What happens now?

Posted by N. Cep on July 28, 2015 at 11:38am 0 Comments

I think the idea that there are steps to grieving or that there is a point when you get over the grief is totally wrong. However, as you said, it is correct is that we are not prepared for it. I think our society is a bit in denial of death. And though the loss of a loved one is one of the most natural processes, more natural than even birth, I would argue, we have this perception of it as an anomaly. I think we can change this by talking about death more over the course of our whole…

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The facts.

Posted by N. Cep on July 28, 2015 at 11:30am 0 Comments

My mom died in March of this year (25th) of a brain aneurism a week before her 65th birthday. This was exactly 2 years after an aortic dissection, but was quite sudden and unexpected because a week later the heart surgeon had told her that she was, as far as he was concerned "cured". 



She leaves a huge hole in many people lives, and we are all trying to figure out how to live without her. Relationships are changing. This is especially hard for my dad as they…

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